Meet Our Partners
The FTD Disorders Registry is a nonprofit LLC founded by The Bluefield Project to Cure Frontotemporal Dementia and The Association for Frontotemporal Degeneration (AFTD). These two organizations remain committed to the success of the Registry, providing strategic leadership and funding to sustain the business operations.
The Bluefield Project was founded by a family group whose lives have been directly impacted by frontotemporal dementia (FTD). The Bluefield Project was established in 2010 to fund research directed towards curing FTD. Frustrated that there were no treatment prospects on the horizon for frontotemporal dementia, this family provided funds to the University of California, San Francisco, to form the Consortium for Frontotemporal Dementia Research (CFR). The Bluefield Project works to raise awareness and increase support to accelerate frontotemporal dementia research. The Bluefield Project is a 501(c)(3) organization.
AFTD was founded (originally as the Association for Frontotemporal Dementias) by Helen–Ann Comstock in 2002. The organization is the product of her experience as an FTD caregiver and collaboration with scientists, physicians, and other caregivers who echoed the need for increased attention to these devastating diseases. Today AFTD funds research toward diagnosis, treatment, and a cure; provides information and support to those directly impacted by FTD; works to raise awareness and understanding of FTD; and advocates for research and appropriate, affordable services. AFTD values knowledge, collaboration, respect, dignity, and compassion. The AFTD is a 501(c)(3) organization.
In addition to funding from the Bluefield Project and The AFTD, the FTD Disorders Registry is supported by a generous grant from the Rainwater Charitable Foundation’s Tau Consortium program.
About US
Together we can find a cure for ftd
The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.
Your privacy is important! We promise to protect it. We will not share your contact information.
CONNECT2CAREGIVERS
This 15-month remote study will help researchers determine whether caregivers of persons with dementia, including FTD, would find a technology-based matching program valuable for locating another caregiver for peer-to-peer support. Additionally to determine if algorithmic matches are more beneficial than random ones. Must be at least 18 years old, have access to the internet, and be a current or former caregiver who has been in the role of providing care for someone with dementia for at least 3 months.
For more information, visit the study listing on ClinicalTrials.gov.