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Join the FTD
Disorders Registry

Scientists are making real progress in our understanding of FTD, and every person's story is vital. The FTD Disorders Registry invites people living with FTD, including caregivers, family, and friends, to join this critical movement towards a cure.

Join the registry. Your story can help lead us to a cure.

Still trying to decide whether to join? Visit the WHY JOIN or ABOUT THE REGISTRY tabs above for more information.


The Registry for those affected by:

  • bvFTD
  • PPA
  • PSP
  • CBD

All form fields are required.

Please tell us more about yourself by choosing from the options below:

Care Partner Information

If you are helping an FTD-diagnosed person enroll, please enter your information below.