Joining the Registry is easy and should take less than 20 minutes.
1. Create an account with your information:
All participants are asked to create a password-protected account by providing basic contact and demographic information. A list of all information being requested can be read here.
2. Select which type of registry you want to join:
- Contact Registry — Receive emails about FTD and the Registry, including news and general research updates.
- Research Registry — In addition to receiving emails about FTD, registrants are sent study notices and can complete surveys to help researchers better understand FTD. Data from your surveys has all information that can identify you removed and is kept confidential. Note: To complete this registration, you will need to read and accept a two-part informed consent.