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Join the FTD
Disorders Registry

Scientists are making real progress in our understanding of FTD, and every person's story is vital. The FTD Disorders Registry invites people living with FTD, including caregivers, family, and friends, to join this critical movement towards a cure.

Join the registry. Your story can help lead us to a cure.



Still trying to decide whether to join? Visit the WHY JOIN or ABOUT THE REGISTRY tabs above for more information.

 

The Registry for those affected by:

  • bvFTD
  • PPA
  • PSP
  • CBD
  • FTD-ALS

All form fields are required.

Please tell us more about yourself by choosing from the options below:

Care Partner Information

If you are helping an FTD-diagnosed person enroll, please enter your information below.

 

Take Note!

If you are helping someone diagnosed to join, please select that option in the pull down menu and fill in their contact information and remember to include your contact information as well.

Take Note!

If you are helping someone diagnosed to join, but you also want to join the registry, you must complete their join/participate in research process first. Then, return to the homepage and click on Join the Registry to create your own individual profile.

Your Privacy!

Your privacy is important! We promise to protect it. We will not share your contact information with anybody, and joining the registry is voluntary.

Learn More >

Your Voice is Vital!

By joining the registry you have chosen to stand up and be counted. You will have access to everything that is on our public web pages and can receive email updates on the latest FTD news.

If you want to take part in research, which includes answering our polls and surveys, you must complete the "Join the Registry" process and then select "I'm eligible and want to participate" bar on the next page to create a password-protected account.

Need Help?

Contact the Registry Director, Dr. Dianna Wheaton, at director@ftdregistry.org or call 888-840-9980.