You are invited to hear the latest research information, collect resources, and connect with others who understand the FTD journey at the 2020 AFTD Education Conference on Friday, April 17 in Baltimore, MD.
Registration is now open for the AFTD’s annual education event, which will be at the Sheraton Inner Harbor Hotel. This conference, has sessions scheduled from 9 a.m. until 5 p.m., and is followed by a social reception. All attendees are invited to all events.
Each year, AFTD brings together people living with FTD, their care partners and families, researchers, and healthcare professionals to learn about the latest in FTD research, care and support strategies, and to engage further with the AFTD community.
Rome Hartman, a producer of CBS newsmagazine “60 Minutes,” will be this year’s keynote speaker. In May 2019, Mr. Hartman co-produced a segment on FTD for “60 Minutes” that brought FTD awareness to millions of national television viewers.
At AFTD’s 2019 Hope Rising Benefit in October in New York City, Mr. Hartman spoke about what he learned from the segment. FTD “is often very confusing and frightening, both for people living with [the disease] and for caregivers, because a timely and accurate diagnosis is still so elusive for so many,” he said. “And — perhaps most striking to me — people coping with FTD display remarkable courage and determination.”
Halima Amjad, M.D., MPH, Assistant Professor of Medicine at Johns Hopkins University School of Medicine
Murray Grossman, M.D., Ed.D., Professor of Neurology and Psychiatry at the University of Pennsylvania and Director of the Penn FTD Center
Chiadi Onyike, M.D., MHS, Associate Professor of Psychiatry and Behavioral Sciences at Johns Hopkins University School of Medicine and Director of the Frontotemporal Dementia and Young-Onset Dementias Program at The Johns Hopkins Hospital
Katie Brandt, MM, Director of Caregiver Support Services in the Frontotemporal Disorders Unit at Massachusetts General Hospital and Co-Chair of the National Alzheimer’s Project Act (NAPA) Advisory Council
Jennifer Pilcher, Ph.D, CMC, Founder of Clear Guidance, Editor in Chief of the Journal of Aging Life Care
In the afternoon, healthcare professionals and other FTD experts will present interactive breakout sessions that will delve into clinical issues and care strategies related to FTD symptoms. The final sessions of the day allow former caregivers, current care partners, and persons diagnosed opportunities to connect.
1:00 p.m. Clinical Issues
- It Takes a Team
- Brain-Behavior Connections in Behavioral FTD
- Current and Emerging Therapeutic Approaches to FTD
- Understanding PPA
- Genetics of FTD
2:00 p.m. Care Strategies
- A Positive Approach to bvFTD: A View from the Inside Out
- Advocating for Care and What I Wish I Knew
- Developing Communication Strategies
- Approaches to Care in FTD/ALS
- Apathy and Grief
3:20 p.m. Support and Networking
- Questions & Discussion for Care Partners
- Questions & Discussion on Research
- Questions & Discussion for People with FTD
- Online Platforms for FTD Networking
- Finding Hope in Loss: A Discussion for Former Caregivers
The Registration fee is $50 ($75 for healthcare professionals).
If you cannot afford the registration fee, but would like to attend, contact AFTD by email at email@example.com to request a waiver code. You must do so prior to registering. Only people with FTD and current care partners/caregivers/family members are eligible for this option.
AFTD also offers modest financial assistance, in the form of Comstock Travel Grants, for people with FTD and care partners interested in attending the conference. Grants can be used toward the cost of travel, lodging, and conference fees. For more information, click the button below and scroll down to “Travel Grants.”
The Sheraton Inner Harbor is centrally located in downtown Baltimore. It is a short cab ride from BWI Airport and Amtrak’s Baltimore Penn Station.
A block of hotel rooms at the Sheraton has been reserved for the nights of April 15-17 at a rate of $149 per night, plus tax. The deadline to secure a room at the group rate is Wednesday, March 25 by 6 p.m. EST. You can reserve a room online or reserve by phone by calling 1-800-325-3535 and refer to the meeting name (AFTD conference).
If you are unable to attend this conference in person, you will be able to livestream portions of the conference online, free of charge. Watch for more information prior to the event about how to register and log in.
AFTD offers a range of corporate and nonprofit sponsorship opportunities for the 2020 Education Conference. Your sponsorship can bring support and connection for families facing FTD today — and bring closer a world without this disease. Click here or contact AFTD Development Manager Amanda Knight for more information. Deadline is February 28, 2020.
Register for the 2020 AFTD Education Conference now so you can learn, share, and make connections with others in the FTD community!
2020 AFTD Education Conference
Friday, April 17, 2020
9:00 to 5:00 p.m. with reception following
Sheraton Inner Harbor Hotel
300 S. Charles St.
Baltimore, MD 21201