Quick Question August 2023 Result: Are you a current or former caregiver for someone with FTD?

In August 2023, the Registry asked about the current and former caregiver status of spouses, family members and friends of FTD diagnosed individuals. Additionally, the respondents were able to report the number of hours spent caring for a loved one each day. The purpose of this question was to understand the demographics and time commitment of the individuals providing daily support and care within the FTD community. 

Key Highlights

• 845 total respondents
• 67.8% female, 29.1% male, 3.1% no response
• Spouses 48.6%, family member 28.8%, FTD diagnosed person 4.5%, caregiver 3.7% and friends 0.9%
• Of the total respondents, 71% reported being a current or former caregiver of an FTD diagnosed loved one.
• 42.7% of the caregivers reported spending 24 hours per day performing caregiver tasks.
• Of all caregiver respondents, females (70.6%) were more likely to care for an FTD diagnosed loved one.
• Spouses (65.3%) weighed in as the highest group among current and former caregivers.
• Biological family members were the second highest group of caregivers with 25.8% of the respondents.
• The top 3 responding countries were the United States, Canada and Australia.