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FTDDR: People Serving People

While the FTD Disorders Registry (FTDDR) would not be possible without our founding and supporting organizations, our true foundation continues to be the people who comprise the community that is...more >


2 Years, 2 Founding Organizations

The FTD Disorders Registry (FTDDR) is a shared vision between The Association for Frontotemporal Degeneration (AFTD) and...more >


FTDDR Exceeded Enrollment Predictions on First Day!

More than 2,300 persons affected by frontotemporal degeneration, including more than 400 diagnosed persons, have enrolled in the FTD Disorders Registry (FTDDR) since the data collection tool...more >


FTDDR Celebrates 2 Years!

Guess who’s turning two? Yes, 2 years ago on March 28, 2017, the FTD Disorders Registry (FTDDR) was launched when our website went live and we began enrolling persons affected by the spectrum of...more >


AFTD Education Conference: May 3, 2019

Find Help. Share Hope. You are invited to the 2019 AFTD Education Conference on May 3, 2019, in Los Angeles. Come for a day of learning, sharing and making connections with others in the FTD...more >