A total of 496 people responded. Responses showed that healthcare interactions are a regular part of life for many in the FTD community.

We often talk about deidentified data provided to researchers., but what does “deidentified data” really mean, and how can it help advance FTD research while protecting your privacy?

Frontotemporal degeneration research is becoming more collaborative, offering real momentum toward faster trials and more meaningful progress for families impacted by the disease.

A total of 533 community members shared their experiences, offering valuable insight into the diagnostic journey. These responses help deepen our understanding of the challenges individuals and families face and highlight opportunities to improve earlier recognition and access to care.

When you stay research ready, you help researchers understand that there is a strong, engaged, community eager to accelerate progress.

A total of 533 community members shared their experiences, offering valuable insight into the diagnostic journey. These responses help deepen our understanding of the challenges individuals and families face and highlight opportunities to improve earlier recognition and access to care.

Learn how to find FTD clinical trials and stay informed as new research opportunities emerge.

AviadoBio has expanded its ASPIRE-FTD clinical trial, creating new opportunities for people with GRN mutations to participate in gene therapy research.

534 individuals responded, providing insight into how symptoms of FTD can sometimes intersect with law enforcement

Care partners play a vital role in helping researchers understand how the impact of FTD unfolds in daily life. Through their observations, experiences, and participation in the FTD Disorders Registry, care partners provide insights that shape future studies and ensure research reflects the real challenges families face.