Press

Changes improve user experience and collect additional data

Highlights from 2020, a historic year!

Having a specific treatment to address behavioral issues in persons diagnosed with frontotemporal degeneration (FTD) would provide some much-needed relief and may help return quality of life to those affected and their caregivers. FOXY: A Phase 2 Clinical Trial of Intranasal Oxytocin for Frontotemporal Dementia seeks to assess the safety, tolerability, and effectiveness of one…

Patience.

The AFTD 2021 Education Conference was held virtually on May 13 and 14, 2021, from 12:00 to 4:00 p.m. Eastern time (9:00 a.m. to 1:00 p.m.

Lawrence Golbe, M.D., a leading clinical expert in progressive supranuclear palsy (PSP) and related neurodegenerative conditions, will answer questions submitted by patients and families during a CurePSP Ask the Doctor webinar on Wednesday, March 31, 2021. This one-hour question-and-answer event begins at 2:00 p.m. Eastern Time (11:00 a.m. Pacific). During the webinar, Dr. Golbe will…

Donald Newhouse, a volunteer with the Association for Frontotemporal Degeneration (AFTD) and owner of Advance Publications Inc., has made a $20 million donation to AFTD to fund work targeting frontotemporal degeneration (FTD), the most common form of dementia in people under the age of 60. “My wife Sue and my brother Si suffered from dementias which were…

Mesulam Center for Cognitive Neurology and Alzheimer’s Disease at Northwestern University is hosting a PPA Conference: Communication & Connection on Friday, March 26, 2021. This online education and support event is for persons living with primary progressive aphasia (PPA), their families, and professionals. This event enables participants to: Learn about PPA from experts at Northwestern…

CurePSP will host an Ask the Scientist webinar on Thursday, March 18, 2021, when Dr. Günter U. Höglinger will discuss two new PSP scales: mPSPRS and PSP-CDS. The hour-long, online session begins at 11:00 a.m. Easter Daylight Time (8:00 a.m. Pacific). The Progressive Supranuclear Palsy (PSP) Rating Scale is a prospectively validated, physician-rated measure of…

Learn about the connection between changes in the structure of the brain and behavioral symptoms during a webinar on Wednesday, February 17, 2021.