Together we can find a cure for ftd

The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.

Your privacy is important! We promise to protect it. We will not share your contact information.

Read Full Privacy Statement

WHAT IS THE FTD DISORDERS REGISTRY?

The Registry is an online database that collects information from those affected by all types of frontotemporal degeneration (FTD):

  • behavioral variant FTD (bvFTD)
  • primary progressive aphasias (PPA)
  • progressive supranuclear palsy (PSP)
  • corticobasal degeneration (CBD)
  • FTD with motor neuron disease (also called FTD-ALS)

Persons diagnosed, current and former caregivers, family, and friends can join. As a member of the Registry, you can help us advance the science and move faster toward finding treatments and cures. The first step is simple:

Together we can find a cure for ftd

The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.

Your privacy is important! We promise to protect it. We will not share your contact information.

Read Full Privacy Statement

WHAT IS THE FTD DISORDERS REGISTRY?

The Registry is an online database that collects information from those affected by all types of frontotemporal degeneration (FTD):

  • behavioral variant FTD (bvFTD)
  • primary progressive aphasias (PPA)
  • progressive supranuclear palsy (PSP)
  • corticobasal degeneration (CBD)
  • FTD with motor neuron disease (also called FTD-ALS)

Persons diagnosed, current and former caregivers, family, and friends can join. As a member of the Registry, you can help us advance the science and move faster toward finding treatments and cures. The first step is simple:

AND NOW WE WORK TOGETHER >

Will you join the community working to end FTD?

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I AM DIAGNOSED WITH FTD

enrolling myself in the Registry or joining with the help of a care partner.

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I AM A FAMILY MEMBER (BIOLOGICAL RELATIVE)

of a person who is/was diagnosed with FTD enrolling myself in the Registry.

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I AM A SPOUSE, CAREGIVER, OR FRIEND

of a person who is/was diagnosed with FTD enrolling myself in the Registry.

allied health professionals

I AM A RESEARCHER, CLINICIAN, STUDY COORDINATOR, OR OTHER ALLIED HEALTH PROFESSOINAL

with a connection to FTD disorders, enrolling myself in the Registry to stay informed about new studies, resources, and Registry news.

UPDATES

6704 persons
joined the
registry

1699 persons
diagnosed
with ftd

2854 Biological
Family
Members

2151 Spouses,
caregivers,
friends

WAYS TO HELP

JOIN US TODAY

Be part of the community working to end FTD. Every voice counts.

PARTICIPATE IN RESEARCH

Support the science for an FTD cure. Sign up here.

SPREAD THE WORD

Invite family and friends to join the growing FTD Registry.

THE FTD REGISTRY IS A PARTNERSHIP OF:

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