NUMBERS HAVE POWER.
JOIN THE REGISTRY.
ADVANCE THE SCIENCE.
Together we can find a cure for ftd
The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.
Your privacy is important! We promise to protect it. We will not share your contact information.
The Registry is an online database that collects information from those affected by all types of frontotemporal degeneration (FTD):
Persons diagnosed, current and former caregivers, family, and friends can join. As a member of the Registry, you can help us advance the science and move faster toward finding treatments and cures. The first step is simple:
NUMBERS HAVE POWER.
JOIN THE REGISTRY.
ADVANCE THE SCIENCE.
NUMBERS HAVE POWER.
JOIN THE REGISTRY.
ADVANCE THE SCIENCE.
Together we can find a cure for ftd
The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.
Your privacy is important! We promise to protect it. We will not share your contact information.
The Registry is an online database that collects information from those affected by all types of frontotemporal degeneration (FTD):
Persons diagnosed, current and former caregivers, family, and friends can join. As a member of the Registry, you can help us advance the science and move faster toward finding treatments and cures. The first step is simple:
AND NOW WE WORK TOGETHER >
Will you join the community working to end FTD?
UPDATES
Quick Question July 2025 Result:
528 participants responded to the FTD Disorders Registry’s July Quick Question on sleep difficulties.
New Study Explores How FTD-Linked Genes May Shape Brain
Researchers have long understood that frontotemporal degeneration (FTD) is a neurodegenerative disease that begins in adulthood. But new questions are emerging.
The Role of Longitudinal Data in Understanding FTD Progression
Learn how collecting longitudinal data helps researchers track FTD progression over time and develop more effective diagnostics and treatments.
Quick Question July 2025 Result:
528 participants responded to the FTD Disorders Registry’s July Quick Question on sleep difficulties.
New Study Explores How FTD-Linked Genes May Shape Brain
Researchers have long understood that frontotemporal degeneration (FTD) is a neurodegenerative disease that begins in adulthood. But new questions are emerging.
Quick Question July 2025 Result:
528 participants responded to the FTD Disorders Registry’s July Quick Question on sleep difficulties.
THE FTD REGISTRY IS A PARTNERSHIP OF:

