In the world of FTD, every story advances the science.
Starting with yours.
TOGETHER WE CAN FIND A CURE FOR FTD
The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.
Your privacy is important! We promise to protect it. We will not share your contact information.
Read Full Privacy StatementWhat is the FTD Disorders Registry?
Learn more about the registry and FTD Spectrum
The Registry is an online database to collect information from those affected by all types of Frontotemporal Degeneration: behavioral variant FTD (bvFTD), any one of the primary progressive aphasias (PPA), progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), or FTD with motor neuron disease (also called FTD-ALS). Persons diagnosed, (current/former) caregivers, family, and friends can join. As a member of the Registry, you can help us advance the science and move faster toward finding treatments and cures. The first step is simple: tell us your story.
2705
persons joined the registry
497
persons diagnosed with FTD
1085
family members
1120
caregivers
Ways to Help
Participate in Research
Support the science for an FTD cure. Sign up here.
