in the world of ftd, every story advances the science.
TOGETHER WE CAN FIND A CURE FOR FTD
The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.
Your privacy is important! We promise to protect it. We will not share your contact information.
What is the FTD Disorders Registry?
The Registry is an online database that collects information from those affected by all types of frontotemporal degeneration (FTD):
- behavioral variant FTD (bvFTD)
- primary progressive aphasias (PPA)
- progressive supranuclear palsy (PSP)
- corticobasal degeneration (CBD)
- FTD with motor neuron disease (also called FTD-ALS)
Persons diagnosed, current and former caregivers, family, and friends can join. As a member of the Registry, you can help us advance the science and move faster toward finding treatments and cures. The first step is simple:
I am Diagnosed with FTD
enrolling myself in the Registry or joining with the help of a care partner.
I am a Family Member (Biological Relative)
of a person who is/was diagnosed with FTD enrolling myself in the Registry.
I am a Spouse, Caregiver, or Friend
of a person who is/was diagnosed with FTD enrolling myself in the Registry.
Updates
Ways to Help
JOIN US TODAY
Be part of the community working to end FTD. Every voice counts.
PARTICIPATE IN RESEARCH
Support the science for an FTD cure. Sign up here.
SPREAD THE WORD
Invite family and friends to join the growing FTD Registry.
