Home

In the world of FTD, every story advances the science. 

Starting with yours.

TOGETHER WE CAN FIND A CURE FOR FTD

 

The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.

     

Your privacy is important! We promise to protect it. We will not share your contact information.

Read Full Privacy Statement

What is the FTD Disorders Registry?

 Learn more about the registry and FTD Spectrum

The Registry is an online database to collect information from those affected by all types of Frontotemporal Degeneration: behavioral variant FTD (bvFTD), any one of the primary progressive aphasias (PPA), progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), or FTD with motor neuron disease (also called FTD-ALS). Persons diagnosed, (current/former) caregivers, family, and friends can join. As a member of the Registry, you can help us advance the science and move faster toward finding treatments and cures. The first step is simple: tell us your story.

Join the Registry. Tell your story. Advance the science.

And Now We Work Together > Will you join the community working to end FTD?

Updates

2480
persons joined the registry

 

455
persons diagnosed with FTD
989
family members

 

1036
caregivers

 

Play ‘Going Down in Flames’ Premiere Show May 30, 2019 Benefits AFTD

A play based on the true story of a clown who gets dementia will premiere in Portland, Oregon, on May 30, 2019, with a reception and special showing that benefits the Association for Frontotemporal Degeneration.

Going Down in Flames is based on the true story of legendary San Francisco clown Queenie Moon. The play by Danny Mankin and directed by Angela Van Epps runs May 31 through June 9, 2019, at...more >

Ways to Help

Join Us Today

Be part of the community working to end FTD. Every voice counts.

 

Participate in Research

Support the science for an FTD cure. Sign up here.

 Participate in Research

Spread the Word

Invite family and friends to join the growing FTD Registry.

 Be an advocate

 Raise awareness

The FTD Registry is a partnership of:

 Partner with us

aftd logo v3.png

Bluefield-logo-H-all-NEW-web.png