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In the world of FTD, every story advances the science. 

Starting with yours.

TOGETHER WE CAN FIND A CURE FOR FTD

 

The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.

     

Your privacy is important! We promise to protect it. We will not share your contact information.

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What is the FTD Disorders Registry?

 Learn more about the registry and FTD Spectrum

The Registry is an online database to collect information from those affected by all types of Frontotemporal Degeneration: behavioral variant FTD (bvFTD), any one of the primary progressive aphasias (PPA), progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), or FTD with motor neuron disease (also called FTD-ALS). Persons diagnosed, (current/former) caregivers, family, and friends can join. As a member of the Registry, you can help us advance the science and move faster toward finding treatments and cures. The first step is simple: tell us your story.

Join the Registry. Tell your story. Advance the science.

And Now We Work Together > Will you join the community working to end FTD?

Updates

ARTFL –

The study for Advancing Research and Treatment for Frontotemporal Lobar Degeneration is now enrolling persons affected with FTD disorders (USA and Canada). more >

LEFFTDS –

The study for the Longitudinal Evaluation of Familial Frontotemporal Dementia Subjects is now enrolling individuals and families who have inherited the Tau, Progranulin or C9ORF72 gene mutation (USA and Canada). more >

Coming soon!

Question of the day

A chance to share your experience with others and suggest questions for the community that will help us learn more about FTD.

CUREPSP 2017 Midwest Family Conference, Chicago, Illinois - June 24,2017

CurePSP Family Conferences bring together patients and their families with others who are facing the same challenges for educational programming, and fellowship at a time when outside social opportunities may be shrinking.  A key feature of...more >

Ways to Help

Join Us Today

Be part of the community working to end FTD. Every voice counts.

 

Participate in Research

Support the science for an FTD cure. Sign up here.

 Participate in Research

Spread the Word

Invite family and friends to join the growing FTD Registry.

 Be an advocate

 Raise awareness

The FTD Registry is a partnership of:

 Partner with us

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