NUMBERS HAVE POWER.
JOIN THE REGISTRY.
ADVANCE THE SCIENCE.
Together we can find a cure for ftd
The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.
Your privacy is important! We promise to protect it. We will not share your contact information.
WHAT IS THE FTD DISORDERS REGISTRY?
The Registry is an online database that collects information from those affected by all types of frontotemporal degeneration (FTD):
Persons diagnosed, current and former caregivers, family, and friends can join. As a member of the Registry, you can help us advance the science and move faster toward finding treatments and cures. The first step is simple:
NUMBERS HAVE POWER.
JOIN THE REGISTRY.
ADVANCE THE SCIENCE.
NUMBERS HAVE POWER.
JOIN THE REGISTRY.
ADVANCE THE SCIENCE.
Together we can find a cure for ftd
The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.
Your privacy is important! We promise to protect it. We will not share your contact information.
WHAT IS THE FTD DISORDERS REGISTRY?
The Registry is an online database that collects information from those affected by all types of frontotemporal degeneration (FTD):
Persons diagnosed, current and former caregivers, family, and friends can join. As a member of the Registry, you can help us advance the science and move faster toward finding treatments and cures. The first step is simple:
AND NOW WE WORK TOGETHER >
Will you join the community working to end FTD?
WHO CAN JOIN >
Anyone with a connection to FTD disorders and an interest in research is encouraged to join the Registry, including:
- people diagnosed with an FTD disorder
- biological family members
- spouses
- caregivers
- friends
- physicians
- and other healthcare professionals
UPDATES
FTD Disorders Registry Highlights Research at AAIC 2026
The FTD Disorders Registry presented a poster highlighting the value of the Registry at AAIC 2026.
Quick Question June 2026 Result:
A total of 564 people responded, offering important insight into how diagnosis can evolve over time and reflecting the complexity many families face on the FTD journey.
Join in July: Help Grow a Research-Ready Community
Researchers working on FTD studies often face a major challenge: not enough participants. By joining the FTD Disorders Registry, you can help build a stronger, more research-ready community.
FTD Disorders Registry Highlights Research at AAIC 2026
The FTD Disorders Registry presented a poster highlighting the value of the Registry at AAIC 2026.
Quick Question June 2026 Result:
A total of 564 people responded, offering important insight into how diagnosis can evolve over time and reflecting the complexity many families face on the FTD journey.
FTD Disorders Registry Highlights Research at AAIC 2026
The FTD Disorders Registry presented a poster highlighting the value of the Registry at AAIC 2026.
WAYS TO HELP
JOIN US TODAY
Be part of the community working to end FTD. Every voice counts.
PARTICIPATE IN RESEARCH
Support the science for an FTD cure. Sign up here.
SPREAD THE WORD
Invite family and friends to join the growing FTD Registry.
THE FTD REGISTRY IS A PARTNERSHIP OF:
