Starting with yours.
The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.
Your privacy is important! We promise to protect it. We will not share your contact information.
Read Full Privacy StatementThe Registry is an online database to collect information from those affected by all types of Frontotemporal Degeneration: behavioral variant FTD (bvFTD), any one of the primary progressive aphasias (PPA), progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), or FTD with motor neuron disease (also called FTD-ALS). Persons diagnosed, (current/former) caregivers, family, and friends can join. As a member of the Registry, you can help us advance the science and move faster toward finding treatments and cures. The first step is simple: tell us your story.
The study for Advancing Research and Treatment for Frontotemporal Lobar Degeneration is now enrolling persons affected with FTD disorders (USA and Canada). more >
The study for the Longitudinal Evaluation of Familial Frontotemporal Dementia Subjects is now enrolling individuals and families who have inherited the Tau, Progranulin or C9ORF72 gene mutation (USA and Canada). more >
A chance to share your experience with others and suggest questions for the community that will help us learn more about FTD.
Support the science for an FTD cure. Sign up here.
