Ways to Help
1. Invite Your Family and Friends
Help your family and friends join the cause for an FTD cure.
2. Spread the Word on Facebook
Show your support by sharing the FTD Disorders Registry on Facebook today.
Visit the FTD Disorders Facebook page regularly. We welcome you to "like" us, "share" us, and get the word out. The FTD Disorders Registry is for all FTD diagnosed persons, their caregivers, family members and friends.
3. Spread the Word on Twitter/X
Invite others to help find a cure by joining the FTD Disorders Registry today.
Follow @EndFTDregistry
#EndFTD! pic.twitter.com/qaFFGGQiKV
— FTD Registry (@EndFTDregistry) May 13, 2016
4. Advocate ad Raise Awareness
By sharing your story with elected officials you become an advocate and can raise awareness about FTD. Many politicians want to help, but they don’t know about FTD and how challenging it is for individuals and families. Contact the Association for Frontotemporal Degeneration (AFTD) at info@theaftd.org for help finding opportunities to share your story and motivate politicians and policymakers to improve services and resources for patients and families, and to intensify the research needed to find treatments and a cure.
World FTD Awareness week
AFTD launched World FTD Awareness Week in the United States with a kick-off event at the World Trade Center in October 2015. Ten countries around the globe celebrated that first World Awareness Week, raising our voices together to drive research and improve the quality of life of families affected by FTD. World FTD Awareness Week is scheduled each year in the fall. Join the celebration and raise awareness.
http://www.theaftd.org/event/world-ftd-awareness-week
Together we can find a cure for ftd
The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.
Your privacy is important! We promise to protect it. We will not share your contact information.