Find a Study

The FTD Disorders Registry helps to support clinical trials in all forms of frontotemporal degeneration, including:

  • Behavioral variant frontotemporal degeneration (dementia) (bvFTD)
  • Semantic variant primary progressive aphasia (svPPA)
  • Nonfluent/agrammatic variant PPA (naPPA)
  • Logopenic variant PPA (lvPPA)
  • Progressive supranuclear palsy (PSP)
  • Corticobasal degeneration (CBD) / corticobasal syndrome (CBS)
  • Frontotemporal degeneration with amyotrophic lateral sclerosis (FTD-ALS)

Current Studies

Observational Studies (Natural History or Longitudinal)

Treatment Studies

Caregiver Studies

Tissue Donation

Understanding of FTD has increased dramatically thanks to families who have been willing to donate tissue to research through brain donation when a loved one passes away. This is a complex and difficult decision for any family to make. If you are interested in learning more about tissue donation, please visit our Brain Donation page.

More places to Find Studies

  • The Association for Frontotemporal Degeneration posts a table with studies currently recruiting volunteers for the FTD disorders, AFTD-clinical trials listing.
  • CurePSP posts listings of studies for families affected by PSP and CBS/CBD.
  • Michael J. Fox Foundation for Parkinson’s Research lists studies and can help match patients with CBD and PSP to trials using the FoxTrialFinder.

Together we can find a cure for ftd

The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.

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This 15-month remote study will help researchers determine whether caregivers of persons with dementia, including FTD, would find a technology-based matching program valuable for locating another caregiver for peer-to-peer support. Additionally to determine if algorithmic matches are more beneficial than random ones. Must be at least 18 years old, have access to the internet, and be a current or former caregiver who has been in the role of providing care for someone with dementia for at least 3 months.

For more information, visit the study listing on

Other Ways to Help

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