PRESS & NEWS
World FTD Awareness Week is September 28 – October 4, 2026.
When a disease is rare, finding enough people to participate in research can be one of the greatest challenges to developing new treatments.
FTD research depends on participants, families, clinicians, researchers, data, and collaboration working together. Each plays a different role in helping move research forward.
In our August Quick Question, we asked Registry participants, “Have you experienced any safety concerns related to FTD in the past year?” A total of 516 people responded, offering a snapshot …
There are many ways to participate in research. Learn the different options to choose what is best for you and your family.
Together we can find a cure for ftd
The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.
Your privacy is important! We promise to protect it. We will not share your contact information.