PRESS & NEWS

Quick Question October 2024 Result: How much do you feel you (or your loved one’s) participation in the Registry could contribute to advances in FTD research?

552 people answered the FTD Disorders Registry’s October Quick Question about how much they felt participation in the Registry could contribute to advances in FTD research.

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Research Highlight: Exploring Families’ Interest in Understanding Genetic FTD

Kim Jenny, Manager of Genetic Initiatives for the Association for Frontotemporal Degeneration (AFTD), presented the results as a poster at the International Society for Frontotemporal Dementias (ISFTD)’s annual conference.

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Research Highlight: Understanding Social Risk Factors in Research Participation

FTD Disorders Registry Program Manager and ALLFTD Liaison Sweatha Reddy presented a poster on Understanding Social Risk Factors in Research Participation at the Alzheimer’s Association International Conference in Philadelphia, PA.

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Quick Question September 2024 Result: Are you a current caregiver for someone with an FTD disorder?

698 people answered the FTD Disorders Registry’s September Quick Question about whether they were a current caregiver for someone with an FTD disorder.

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Quick Question August 2024 Result: Would you be willing to participate in a remote research study asking about their symptoms and treatment prescribed for FTD? 

460 people answered the FTD Disorders Registry’s August Quick Question about whether they would be willing to participate in a remote research study asking about their symptoms and treatment prescribed for FTD.

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Together we can find a cure for ftd

The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.

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