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FTDDR Registry Manager

The FTD Disorders Registry (FTDDR) LLC was founded in 2015 as a 501(c)3 nonprofit entity with the mission to curate a patient registry to facilitate and advance research for the entire...more >

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CurePSP Virtual Family Conference: May 21, 2021

Persons diagnosed, caregivers, and families can learn about management techniques for progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), multiple system atrophy (MSA) during...more >

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FEATURED RESEARCHER: Meet Dr. Elizabeth Finger

Patience.

This is how Elizabeth Finger, M.D., principal investigator of FOXY: A Phase 2 Clinical Trial of Intranasal Oxytocin for Frontotemporal Dementia (FTD), handles this ...more >

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FEATURED STUDY: FOXY-Intranasal Oxytocin for FTD

Having a specific treatment to address behavioral issues in persons diagnosed with frontotemporal degeneration (FTD) would provide some much-needed relief and may help return quality of life to...more >

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FTD Registry Surpasses 4,200 before 4th Anniversary: March 28, 2021

Highlights from 2020, a historic year!

As the FTD Disorders Registry (FTDDR) reached its 4th Anniversary on March 28, 2021, we continue to surpass enrollment...more >