You are here

Press & News

CurePSP-Ask-Doc-2021-01-25.png

CurePSP Ask the Doctor: January 25, 2021

The coronavirus COVID-19 vaccine and progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), and multiple system atrophy (MSA) will be the topic during a webinar on Monday, January...more >

AFTD-PFDD-Meeting-2021-3-5.png

EL-PFDD Meeting: March 5, 2021

Take the survey, watch the live stream, have your FTD voice heard!

People living with a rare disease are uniquely positioned to provide information to increase...more >

News-Study-PROCLAIM-2020-12.png

FEATURED STUDY: PROCLAIM - A Study of PR006 with FTD-GRN

The PROCLAIM study, sponsored by Prevail Therapeutics, is evaluating safety and effectiveness of a one-time investigational gene therapy (PR006) intended to treat...more >

AFTD-FTDDR-perspectives-in-research.png

Perspectives in FTD Research: Webinars Conducted in Partnership

The FTD Disorders Registry and The Association for Frontotemporal Degeneration (AFTD) have developed a partnership to present educational webinars for the FTD community called “Perspectives in FTD...more >

strategic-plan-blog.png

FTDDR Announces 2020-2022 Strategic Plan

The FTD Disorders Registry (FTDDR) has announced the release of its first Strategic Plan. Covering the years 2020-2022, this written plan focuses on expanding the Registry’s reach and continuing...more >