PRESS & NEWS
Understanding the genetic component of FTD can help families make informed health decisions and contribute to critical research that is paving the way toward earlier detection and better treatments.
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673 participants responded to the FTD Disorders Registry’s May Quick Question on their diagnosis journey.
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The FTD Disorders Registry joined FTD community advocates for a behind-the-scenes tour of the Penn FTD Center,
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The FTD Disorders Registry is a powerful resource for scientists studying FTD disorders. Learn more about how your de-identified data is used.
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When people hear “ALS,” they often think of Lou Gehrig, ice bucket challenges, and the devastating loss of motor function that…
more >Together we can find a cure for ftd
The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.
Your privacy is important! We promise to protect it. We will not share your contact information.