635 people answered our question
The top three answers were:
– Advancing research to benefit others at risk for impacted by FTD disorders (64%)
– Access to new treatments that aren’t available yet – (57.7%)
– Access to my study test results – (56.2%)

The FTD Insights Survey is the largest community survey of people with lived experience of FTD disorders. This survey queried on…

500 people answered the FTD Disorders Registry’s December Quick Question about what type of non-medical interventions have made a positive difference for the person diagnosed with an FTD Disorder.

The FTD Disorders Registry’s November Quick Question received 396 responses about the type of support families with genetic FTD need.

552 people answered the FTD Disorders Registry’s October Quick Question about how much they felt participation in the Registry could contribute to advances in FTD research.