PRESS & NEWS
Only a fraction of people with FTD and their relatives pursue genetic testing. This World FTD Awareness Week, discover how genetic counseling can guide the way.
more >
Caring for a loved one with FTD can make research participation feel impossible. Learn more about the barriers caregivers face and how researchers can make studies more accessible.
more >
Every survey response in the Registry Research Study helps turn lived experience into research data that drives discovery.
more >
World FTD Awareness Week is September 21-27, 2025.
more >
528 participants responded to the FTD Disorders Registry’s August Quick Question on health insurance coverage.
more >Together we can find a cure for ftd
The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.
Your privacy is important! We promise to protect it. We will not share your contact information.