We often talk about deidentified data provided to researchers., but what does “deidentified data” really mean, and how can it help advance FTD research while protecting your privacy?

Frontotemporal degeneration research is becoming more collaborative, offering real momentum toward faster trials and more meaningful progress for families impacted by the disease.

A total of 533 community members shared their experiences, offering valuable insight into the diagnostic journey. These responses help deepen our understanding of the challenges individuals and families face and highlight opportunities to improve earlier recognition and access to care.

When you stay research ready, you help researchers understand that there is a strong, engaged, community eager to accelerate progress.

A total of 533 community members shared their experiences, offering valuable insight into the diagnostic journey. These responses help deepen our understanding of the challenges individuals and families face and highlight opportunities to improve earlier recognition and access to care.