PRESS & NEWS

Why PSP and CBS Clinical Trials Matter

November 15, 2023 : 3:00 – 4:00 p.m. ET

more >

CurePSP Ask the Expert Webinar – October 12, 2023

LEARN HOW RESEARCH GOES FROM THE LAB TO PATIENTS WITH DR. JENNIFER BRUMMET! Research is critical to finding treatments and cures…

more >

Quick Question September 2023 Result: World FTD Awareness Week 2 Questions

During the 2023 World FTD Awareness Week, the Registry used communication channels to ask participants: 1 “What webinar content would you…

more >

Quick Question August 2023 Results: Are you a current or former caregiver for someone with FTD?

Are you a current or former caregiver for someone with FTD?

more >

#FTDQuickQuestions – Brief Surveys Bring Meaningful Insights

Understanding the experiences of people living with Frontotemporal degeneration (FTD) disorders and those supporting them is essential to developing clinical tools…

more >

Together we can find a cure for ftd

The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.

Your privacy is important! We promise to protect it. We will not share your contact information.

Read Full Privacy Statement