PRESS & NEWS
Being counted is an act of hope, a way for individuals and families impacted by frontotemporal degeneration to turn their lived experience into momentum for research, visibility, and a future with better diagnosis, care, and treatments.
Ever wonder why the Registry asks about finances or work life? Here’s how those questions help move FTD research forward.
The highest response was access to specialists with FTD experience with 20.4%. There was also strong support for emotional or mental health support for patient and/or caregiver at 15.2% and …
You joined the FTD Disorders Registry. Now learn five simple ways to stay research ready and strengthen the future of FTD research.
While the PR006 program has been discontinued, research into FTD continues. Here’s what this update means for the community and the path forward.
Together we can find a cure for ftd
The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.
Your privacy is important! We promise to protect it. We will not share your contact information.