PRESS & NEWS

You Joined. Now What? Five Small Ways to Stay Research Ready

You joined the FTD Disorders Registry. Now learn five simple ways to stay research ready and strengthen the future of FTD research.

Prevail Therapeutics PR006 Trial Discontinued

While the PR006 program has been discontinued, research into FTD continues. Here’s what this update means for the community and the path forward.

What Makes a Registry “Research Ready”?

What does it really mean for an FTD registry to be research ready, and why does community participation matter so much?

Strengthening FTD Research with CureGRN

Progress toward an FTD cure depends on communities and researchers working together.

Quick Question December 2025 Result:

712 people responded and your responses are already helping us deepen scientific understanding of this symptom and will contribute directly to future research.

Together we can find a cure for ftd

The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.

Your privacy is important! We promise to protect it. We will not share your contact information.

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