PRESS & NEWS

Prevail Therapeutics PR006 Trial Discontinued

While the PR006 program has been discontinued, research into FTD continues. Here’s what this update means for the community and the path forward.

What Makes a Registry “Research Ready”?

What does it really mean for an FTD registry to be research ready, and why does community participation matter so much?

Strengthening FTD Research with CureGRN

Progress toward an FTD cure depends on communities and researchers working together.

Quick Question December 2025 Result:

712 people responded and your responses are already helping us deepen scientific understanding of this symptom and will contribute directly to future research.

A Year of Growth and Impact: 2025 at the FTD Disorders Registry

As 2025 comes to a close, we reflect on a year of growth and engagement that underscores the FTD Disorders Registry’s role in advancing research and amplifying the voices of those impacted by FTD.

Together we can find a cure for ftd

The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.

Your privacy is important! We promise to protect it. We will not share your contact information.

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