PRESS & NEWS
What does it really mean for an FTD registry to be research ready, and why does community participation matter so much?
Progress toward an FTD cure depends on communities and researchers working together.
712 people responded and your responses are already helping us deepen scientific understanding of this symptom and will contribute directly to future research.
As 2025 comes to a close, we reflect on a year of growth and engagement that underscores the FTD Disorders Registry’s role in advancing research and amplifying the voices of those impacted by FTD.
The FTD Disorders Registry was featured at CTAD in San Diego, where a poster presented by Dr. Shana Dodge highlighted how the Registry is helping accelerate clinical trial recruitment in frontotemporal degeneration.
Together we can find a cure for ftd
The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.
Your privacy is important! We promise to protect it. We will not share your contact information.