NUMBERS HAVE POWER.
JOIN THE REGISTRY.
ADVANCE THE SCIENCE.
Together we can find a cure for ftd
The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.
Your privacy is important! We promise to protect it. We will not share your contact information.
The Registry is an online database that collects information from those affected by all types of frontotemporal degeneration (FTD):
Persons diagnosed, current and former caregivers, family, and friends can join. As a member of the Registry, you can help us advance the science and move faster toward finding treatments and cures. The first step is simple:
NUMBERS HAVE POWER.
JOIN THE REGISTRY.
ADVANCE THE SCIENCE.
NUMBERS HAVE POWER.
JOIN THE REGISTRY.
ADVANCE THE SCIENCE.
Together we can find a cure for ftd
The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.
Your privacy is important! We promise to protect it. We will not share your contact information.
The Registry is an online database that collects information from those affected by all types of frontotemporal degeneration (FTD):
Persons diagnosed, current and former caregivers, family, and friends can join. As a member of the Registry, you can help us advance the science and move faster toward finding treatments and cures. The first step is simple:
AND NOW WE WORK TOGETHER >
Will you join the community working to end FTD?
UPDATES
Quick Question May 2025 Result:
673 participants responded to the FTD Disorders Registry’s May Quick Question on their diagnosis journey.
Inside the Penn FTD Center
The FTD Disorders Registry joined FTD community advocates for a behind-the-scenes tour of the Penn FTD Center,
How Registry Data Is Advancing FTD Research—and Why It Matters
The FTD Disorders Registry is a powerful resource for scientists studying FTD disorders. Learn more about how your de-identified data is used.
- « Previous
- 1
- 2
- 3
- Next »
FTD Registry Launches New Researcher Portal to Accelerate Study Recruitment
The FTD Disorders Registry has launched a new Researcher Portal to accelerate study recruitment.
Accelerating FTD Research: How the Registry Supports Study Recruitment
Learn how the FTD Disorders Registry helps accelerate research by connecting willing participants with studies focused on FTD disorders.
FTD Registry Launches New Researcher Portal to Accelerate Study Recruitment
The FTD Disorders Registry has launched a new Researcher Portal to accelerate study recruitment.
THE FTD REGISTRY IS A PARTNERSHIP OF:

