Press

The Association of Frontotemporal Degeneration (AFTD) is offering a webinar that takes an in-depth look at how to find and access necessary services for persons diagnosed with FTD amidst COVID-19. “Coordinating & Managing FTD Care Today,” presented by Jennifer Pilcher, Ph.D., will be on Tuesday, April 7, 2020, at 4 p.m. EDT (1 p.m. PDT). Pre-registration…

On March 28, 2020, the FTD Disorders Registry (FTDDR) turned 3 years old!

Information and Resources to support you during the COVID-19 pandemic

In most medical situations, and especially when frontotemporal degeneration (FTD) may be involved, a second opinion can make a difference in knowledge and treatment. Your doctor may be a leading specialist or someone you’ve trusted for years. S/he may be smart, compassionate, and thoughtful. But don’t let that prevent you from seeking a second opinion. Know…

While there are numerous closing and cancellations around the world due to COVID-19, including the 2020 AFTD Education Conference, persons affiliated with the Association for Frontotemporal Degeneration are presenting during a couple of upcoming webinars on Thursday, March 19, 2020, that may be of interest: Caring for Someone with Frontotemporal Degeneration – 11 a.m. Eastern Daylight…

“Understanding Anticipatory Grief” will be the topic of a free webinar with Janet Edmunson, M.Ed., on Tuesday, March 17, 2020.

Due to the coronavirus outbreak, CurePSP has canceled this year’s Annual Marco Island Walk.

Up to 10,000 people in the UK could be living with these rare neurological disorders

Rare Disease Day is recognized annually around the world on the last day of February to raise awareness about rare diseases and the issues patients face. Because of leap year, this special day will be recognized Saturday on the rarest of days in the calendar — February 29, 2020. Ironically, more than 400 million people globally…

Study suggests patients can influence outcomes despite a genetic diagnosis.