Finding a Specialist
FTD Resources
Because frontotemporal degeneration (FTD) is rare, it can be hard to find a doctor who is familiar with these conditions. Fortunately, there are FTD specialists who can care for you and your family. Access the following resources to find an expert near you.
The Association for Frontotemporal Degeneration (AFTD) is an advocacy organization with a mission to improve the lives of people affected by FTD. Its website offers an online catalog of specialists located at research and medical centers.
CurePSP is an advocacy organization working to improve awareness, education, and care for prime of life neurodegenerative diseases. The CurePSP Centers of Care is a network of clinics across the United States and Canada where affected people and their caregivers can find medical help. Visit the CurePSP website to find a Center of Care near you.
The Genetic and Rare Diseases Information Center (GARD) is a program of the National Center for Advancing Translational Sciences (NCATS). It provides the public with access to current, reliable, and easy-to-understand information about rare or genetic diseases. If you are unable to find a specialist using the resources above, GARD offers a variety of tips in their "How to Find a Disease Specialist" guide and video.
** Any resources that the FTD Disorders Registry (FTDDR) provides are for informational purposes only. FTDDR is not responsible for and does not endorse the materials at the linked sites. Advice regarding your personal medical management should be obtained through consultation with a healthcare provider who is familiar with your medical history.