FTD Disorders Registry Enrollment Experience Survey

Thank you for participating in the FTD Disorders Registry. We greatly value your input, and your responses will help improve the enrollment process for future participants. Please take a few minutes to answer the following questions.

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About You
Before this survey, were you aware of the FTD Disorders Registry?
How did you first hear about the FTD Disorders Registry?
Have you signed up for the FTD Disorders Registry?
How would you rate the ease of finding the FTD Disorders Registry enrollment information?
Did you find the instructions for enrolling in the FTD Disorders Registry clear and easy to follow?
Thinking about the sign-up process, how long did it take you to complete the enrollment process?
What role did you originally sign up as?
Did you add any additional roles?
Was it easy to understand what would happen after you signed up? (For example, what information you would receive, whether you would participate in research surveys)
Were there any difficulties you encountered during the enrollment process?
How would you rate the overall experience of enrolling in the FTD Disorders Registry?
Would you recommend the FTD Disorders Registry enrollment process to others?
What motivated you to participate in the FTD Disorders Registry?
How easy was it for you to understand the purpose and goals of the FTD Disorders Registry?
What concerns or hesitations do you have about participating in the FTD Disorders Registry?
Would you like to receive a FTD Disorders Registry Numbers Have Power t-shirt?