PRESS & NEWS
CurePSP and UNC Family Conference: June 6-7, 2019
The 2019 Southeast Family Conference for patients, families, and caregivers faced with PSP, CBD, and MSA, will be June 6-7, 2019, in Raleigh, NC.
The 2019 Southeast Family Conference for patients, families, and caregivers faced with PSP, CBD, and MSA, will be June 6-7, 2019, in Raleigh, NC. This is an opportunity to connect with others who are on this journey as well as to meet CurePSP staff, volunteers, and professionals who are devoted to building awareness and finding a cure for these diseases.
The Family Conference is sponsored and organized by CurePSP and the University of North Carolina Movement Disorders Center. It will be held at the Embassy Suites Raleigh Durham Airport in the Research Triangle of North Carolina.
The event begins Thursday, June 6 in the afternoon with a support group facilitator training followed by three support groups, two for patients and one for care partners.
On Friday, June 7, experts will lead sessions on:
- Building a Support Network
- Clinical Trial Updates
- The Importance of Staying Active
- Legal and Financial Planning
- Brain Donation and Leaving a Legacy
- Available Resources
Breakfast and lunch on Friday are included in the registration fee. Early bird registration is $40. After May 1 the fee is $50. Refunds are available up to 1 day before the event.
Together we can find a cure for ftd
The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.
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