PRESS & NEWS

Penn Familial Conference: Uncovering the Genetics of FTD/ALS Feb. 23, 2022

Penn-Familial-conferencer-2022-02-23

Registration is now open for the Penn FTD Familial Conference: Uncovering the Genetics of FTD/ALS, which will be held virtually on Wednesday, February 23, 2022, from 3:00 to 5:30 p.m. Eastern (noon Pacific). This is the second annual familial conference hosted by the University of Pennsylvania’s Frontotemporal Degeneration (FTD) Center. This event features presentations from…

Registration is now open for the Penn FTD Familial Conference: Uncovering the Genetics of FTD/ALS, which will be held virtually on Wednesday, February 23, 2022, from 3:00 to 5:30 p.m. Eastern (noon Pacific).

This is the second annual familial conference hosted by the University of Pennsylvania’s Frontotemporal Degeneration (FTD) Center. This event features presentations from genetic counselors, neurologists, social workers, and more.

This live event will address the challenges and situations that occur due to familial or genetic disease, in particular, people living with or at risk for a familial and/or genetic form of FTD/ALS. In addition, anyone who is interested may attend, including support persons, health care providers, and others.

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AGENDA

The conference features a keynote presentation from David Irwin, MD, and Lauren Elman, MD, on Emerging Therapies in Genetic FTD/ALS. Additional highlights include:

  • Opening Remarks and Introduction of Sponsors and Speakers

    David Irwin, MD
    Lauren Massimo, PhD, CRNP

  • Genetics & Genetic Counseling in FTD-ALS Spectrum Disorders

    Laynie Dratch, ScM, CGC

  • Panel: Why ask Why – How Diagnostic Testing Can Help You and Your Family

    Jim Byelich
    Beth Anderson
    Laynie Dratch, ScM, CGC
    Tanya Bardakjian, MS, CGC

  • Panel: The Predictive Genetic Counseling Experience

    Daniel Barvin
    Diana Gonzalez-Morett
    Laynie Dratch, ScM, CGC
    Weiyi Mu, ScM, CGC

  • Break Out Sessions

  • Reproductive Considerations

    Tanya Bardakjian, MS CGC

  • Legal & Insurance Considerations

    Rachel Paul, MS CGC
    Beth McCarty Wood, MS CGC

  • Family Communication

    Aaron Baldwin, MS, CGC
    Cynthia Clyburn, MSW, LSW

  • Q&A with Panel Volunteers

    Weiyi Mu, ScM, CGC
    Laynie Dratch, ScM, CGC

SEE FULL AGENDA
WATCH THE REPLAY

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