PRESS & NEWS
Quick Question April 2025 Result:
548 participants responded to the FTD Disorders Registry’s April Quick Question on accessing respite care.
Have you tried to access respite care?
548 participants responded to the FTD Disorders Registry’s April Quick Question on accessing respite care. Their input will help researchers better understand the need for enhanced caregiver support.
The full survey results will be used in a future abstract to deepen understanding of caregiver needs and improve support strategies.
Demographics
Spouses answering on behalf of a person diagnosed with an FTD disorder were the largest category of respondents (39%), We also received a large number of responses from people diagnosed with an FTD disorder answering for themselves (18.8%), biological family members answering on behalf of an FTD diagnosed person(14.4%), biological family members answering for themselves (9.3%), and spouses answering for themselves (9.7%).
We received input on this Quick Question from all stages of the FTD journey. The largest group were those in the middle stages of FTD (38%), but we also received input from those whose FTD-diagnosed loved one had already passed away (29%), those in the late-stage of FTD (19%), and those newly diagnosed (12%).
The majority of respondents to this Quick Question were female (67%). 32% were male. Four people did not identify their gender. Answers came from around world with respondents reporting in from 14 countries, 48 states and two U.S. territories.
Together we can find a cure for ftd
The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.
Your privacy is important! We promise to protect it. We will not share your contact information.