Posts by Mary Krause

AviadoBio has expanded its ASPIRE-FTD clinical trial, creating new opportunities for people with GRN mutations to participate in gene therapy research.

Care partners play a vital role in helping researchers understand how the impact of FTD unfolds in daily life. Through their observations, experiences, and participation in the FTD Disorders Registry, care partners provide insights that shape future studies and ensure research reflects the real challenges families face.

CurePSP’s Louder Than Words program provides free voice banking and AI voice cloning tools for people living with PSP, CBD, and MSA, helping individuals preserve their voice and stay connected with loved ones even if speech becomes difficult.

FTD is a spectrum, not a single diagnosis. Recognizing the differences between subtypes helps researchers design smarter studies, accelerate discoveries, and move us closer to effective treatments.

Being counted is an act of hope, a way for individuals and families impacted by frontotemporal degeneration to turn their lived experience into momentum for research, visibility, and a future with better diagnosis, care, and treatments.

Ever wonder why the Registry asks about finances or work life? Here’s how those questions help move FTD research forward.

You joined the FTD Disorders Registry. Now learn five simple ways to stay research ready and strengthen the future of FTD research.

While the PR006 program has been discontinued, research into FTD continues. Here’s what this update means for the community and the path forward.

What does it really mean for an FTD registry to be research ready, and why does community participation matter so much?

Progress toward an FTD cure depends on communities and researchers working together.