Posts by Mary Krause
How Caregiver Burden Affects Research Participation
Caring for a loved one with FTD can make research participation feel impossible. Learn more about the barriers caregivers face and how researchers can make studies more accessible.
Read MoreFrom Surveys to Science: How Registry Data Becomes Research
Every survey response in the Registry Research Study helps turn lived experience into research data that drives discovery.
Read MoreGet Ready for World FTD Awareness Week
World FTD Awareness Week is September 21-27, 2025.
Read MoreORION Trial Ends, Reinforcing the Need for Continued FTD Research
Research is our roadmap to breakthroughs, and sometimes setbacks are the fuel that drive us forward.
Read MoreRegistry Data Featured at AAIC 2025
The FTD Disorders Registry showcased new insights at AAIC 2025.
Read MoreThe Importance of Research in Finding a Cure for FTD Disorders
Research is the key to unlocking treatments and, ultimately, a cure for frontotemporal degeneration..
Read MoreNew Study Explores How FTD-Linked Genes May Shape Brain
Researchers have long understood that frontotemporal degeneration (FTD) is a neurodegenerative disease that begins in adulthood. But new questions are emerging.
Read MoreThe Role of Longitudinal Data in Understanding FTD Progression
Learn how collecting longitudinal data helps researchers track FTD progression over time and develop more effective diagnostics and treatments.
Read MoreWhat Happens After You Join the FTD Disorders Registry?
Learn what happens next after you make the decision to join the FTD Disorders Registry.
Read MoreFTD Registry Launches New Researcher Portal to Accelerate Study Recruitment
The FTD Disorders Registry has launched a new Researcher Portal to accelerate study recruitment.
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