Press

Perspectives in FTD Research Webinar Series

Registration is now open for the Penn FTD Familial Conference: Uncovering the Genetics of FTD/ALS, which will be held virtually on Wednesday, February 23, 2022, from 3:00 to 5:30 p.m. Eastern (noon Pacific). This is the second annual familial conference hosted by the University of Pennsylvania’s Frontotemporal Degeneration (FTD) Center. This event features presentations from…

Hey, Partner! Are you ready to saddle up and join the roundup to advance frontotemporal degeneration (FTD) research?

Perspectives in FTD Research Webinar Series

In the quest for knowledge, interventions, and cures, FTD Disorders Registry (FTDDR) expanded information that is included in its secure database.

Preclinical studies using a new Protein Transport Vehicle (PTV) to cross the selective semi-permeable blood-brain membrane may offer a new way to treat certain types of frontotemporal degeneration (FTD). The research also provided new information about the molecular and cellular system that may contribute to FTD. Researchers from Denali Therapeutics developed PTV as a way…

There may come a time when the disease of a person diagnosed with frontotemporal degeneration (FTD) has progressed to the point that family caregivers consider having someone come into their home to assist with care. Home care is health care or supportive care provided by a professional who comes to a private dwelling where the…

A webinar on the Role of Occupational Therapy in FTD Care will be held Thursday, December 16, 2021, beginning at 4:00 p.m. Eastern (1:00 p.m.

Frontotemporal Degeneration: A Voice of the Patient (VOP) Report, which analyzes and summarizes data and perspectives from people living with FTD, caregivers, and family members, was released on October 27, 2021. Produced by The Association for Frontotemporal Degeneration (AFTD), the VOP Report contains information from the Externally Led Patient-Focused Drug Development (EL-PFDD) meeting held in March with…

RARE Revolution Magazine focused on frontotemporal degeneration (FTD), the FTD Disorders Registry and educational content about this disease in its October 2021 Digital Spotlight. There are seven articles that are part of this featured topic. FTD Registry Director Dianna Wheaton, M.S., Ph.D., CHES, discussed the importance of registries and, in particular, the benefits of joining…