Press

The FTD Disorders Registry invites you to answer our monthly Quick Questions!

RESULTS The following charts and lists are based on 852 submissions. Question results: 48% No, I have not tried to get genetic testing 6% No, I do not want genetic testing 4% No, I was tested more than 3 years ago 10% Yes, I was tested by one of my physicians 3% Yes, I was…

Rachel and Maria, founders of the Remember Me Podcast, joined the ALLFTD Study and produced eight podcast episodes in June 2022 that detail their experiences. Two podcast episodes were released per week. One covers an ALLFTD visit procedure, and the other discusses the science behind that procedure. To learn more about ALLFTD, visit the website…

Julie Hicks, MA, CCC-SLP, a speech-language pathologist, will discuss swallowing issues during a CurePSP Ask the Expert webinar on Monday, June 27, 2022, beginning at 6:00 p.m. Eastern Daylight Time (3:00 p.m. Pacific). Swallowing dysfunction, also called dysphagia, is a common complaint in patients with progressive supranuclear palsy (PSP), multiple system atrophy (MSA), and corticobasal…

Clinical Trials and Beyond: What Do I Need to Know About Types of FTD Research? will be presented Friday, June 24, 2022, beginning at 3:00 p.m.

Making life better for persons diagnosed with dementia and their caregivers, it’s about family — hers and yours — and supporting families who are dealing with devastating diseases. Laura N. Gitlin, Ph.D., has spent more than 35 years applying a family-directed approach to her research.

Testing a Tool to Reduce Behavioral Symptoms and Caregiver Distress

It is an extraordinary time in the research arena for frontotemporal degeneration (FTD).

On Monday, April 25, 2022, CurePSP will host its Virtual Spring Family Conference.

Ask the Expert Chantal Boisvert, MD, OD, Associate Professor of Ophthalmology at Duke University Eye Center, will address eye conditions that may affect persons diagnosed with progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), and multiple system atrophy (MSA) during a webinar on Wednesday, March 30, 2022. The one-hour program begins at 2:00 p.m. Eastern Daylight…