Skip to content
FTD-Registry-2019-Logo_RGB
  • Why join
  • Find A Study
  • For Families
  • For Researchers
  • For Healthcare Pros
  • About Us
  • News
  • Contact Us

NEWS | CONTACT US

  • Why join
  • Find A Study
  • For Families
  • For Researchers
  • For Healthcare Pros
  • About Us
  • News
  • Contact Us
WHY JOIN
FIND A STUDY
FOR FAMILIES
FOR RESEARCHERS
FOR HEALTHCARE PROS
ABOUT US

Press

International FTD Caregiver Day Meeting: Friday, November 4, 2022

By | October 26, 2022

ISFTD Congress offers in-person and virtual events at no cost. Caregiver Day offers in-person and virtual options for family members and professional caregivers to attend on Friday, November 4, 2022.

Read More

CurePSP Fall Family Conference: November 14, 2022

By | October 18, 2022

The CurePSP Fall Family Conference will be held in person at the Airport Marriott in Philadelphia, Pennsylvania on Monday, November 14, 2022.

Read More

Penn FTD Center Caregiver Conference: October 14, 2022

By | September 28, 2022

The Penn Frontotemporal Degeneration (FTD) Center will hold its Annual Caregiver Conference on Friday, October 14, 2022, from 8:15 a.m.

Read More

Quick Question September 2022 Results: Would you do genetic testing if offered for free by a nonprofit?

By | September 28, 2022

More than 950 people (70%) said “Yes” to the FTD Disorder Registry’s September 2022 Quick Question. There were 1,381 people who responded to the monthly poll.

Read More

Quick Question August 2022 Results: Why will you or won’t you participate in FTD research?

By | September 14, 2022

According to the August 2022 Quick Questions survey, people participate in FTD research because they want to find treatments and a cure for FTD.

Read More

CurePSP Hope as Big as Texas: September 15, 2022

By | August 29, 2022

The 2022 Hope as Big as Texas event on Thursday, September 15, 2022, celebrates hope and Hispanic heritage.

Read More

CurePSP Ask the Expert Webinar: September 7, 2022

By | August 24, 2022

Adriana Gonzalez, LCSW, will discuss Advance Care Planning & Navigating Future Health Care Decisions during a CurePSP Ask the Expert webinar on Monday, September 7, 2022.

Read More

Quick Questions July 2022 Results: Have you participated in an FTD research study?

By | August 18, 2022

Almost half of the 555 people who responded to our July 2022 Quick Questions survey reported that they are in or have participated in at least one FTD research study.

Read More

Poked & Scanned: Procedures Used in Research Studies

By | August 16, 2022

Those who enroll in research and undergo the procedures can help advance science and bring us closer to when these diseases are in the past. Learn about these tests and hear one research participant’s thoughts.

Read More

AFTD Food For Thought 2022

By | July 28, 2022

Everybody eats, but not everybody knows about frontotemporal degeneration (FTD).

Read More
« Newer Posts
Older Posts »

Why Join

Find a Study

Ways to Help

For Researchers

FTD Resources

About Us

Contact

© 2016-2026 FTD Disorders Registry LLC, All Rights Reserved.
A qualified 501(c)(3) tax-exempt organization.

Terms and Conditions | Privacy Policy | Data Use Table

white footer logo

Numbers have power.
Join the Registry.
Advance the science.

comodo secure logo

FTD Disorders Registry LLC
2700 Horizon Dr., Suite 120
King of Prussia, PA 19406

888-840-9980

manager@FTDregistry.org

Tell us what you think. Provide us with your feedback.