Penn FTD Center Caregiver Conference: October 14, 2022


The Penn Frontotemporal Degeneration (FTD) Center will hold its Annual Caregiver Conference on Friday, October 14, 2022, from 8:15 a.m.

The Penn Frontotemporal Degeneration (FTD) Center will hold its Annual Caregiver Conference on Friday, October 14, 2022, from 8:15 a.m. to 3:00 p.m. EDT.

This will be an in-person-only event at the University of Pennsylvania Smilow Center for Translational Research in Philadelphia, Pennsylvania.

This conference is designed to empower caregivers and provide FTD updates. It is for persons diagnosed with FTD, their caregivers, family, and friends to access information and support.

Presenters include leading experts in neuropsychology, clinical care, genetics, and cognitive neuroscience. Attendees will hear the latest on innovative treatments, diagnostics, and practical caregiver strategies.

Sponsors support this event so there is no cost for attendees. However, there is an option for you to make a donation to the Penn FTD Center Patient & Caregiver Education Fund when you register.


Below are highlights of the day’s agenda. You can choose your morning and afternoon breakout sessions when you register.

  • 7:30 a.m. Continental Breakfast
  • 8:15 a.m. Opening Remarks and Welcome: Murray Grossman, MD
  • 8:30 a.m. What is Frontotemporal Degeneration (FTD)? - Lauren Massimo, PhD, CRNP
  • 9:00 a.m. Caregiver Strategies for Symptom Management - Gabriela Bustamante, MPH, RN
  • 9:30 a.m. Genetics of FTD Spectrum Disorders - Laynie Dratch, ScM, CGC
  • 10:00 a.m. Coffee Break & Poster Session
  • 10:30 a.m. Breakthroughs in Research - David Irwin, MD
  • 11:00 a.m. Breakout Sessions - Clinical Syndromes: What do we know?
  • 11:30 a.m. Lunch
  • 12:15 p.m. Keynote - Melissa Livney, PsyD; Cathay Tully; Keith Bethel
  • 1:30 p.m. Legal and Financial Considerations - Bess M. Collier, J.D., LL.M.
  • 1:45 p.m. Psychosocial Needs - Kate Lietz, MSW
  • 2:00 p.m. Breakout Sessions - Care Strategies
  • 2:30 p.m. Coffee and Networking
  • 3:00 p.m. Conference Ends

While the conference officially begins at 8:15 a.m., a continental breakfast will be offered at 7:30 a.m. More details on the event will be shared with registrants closer to the date.

If you have questions or concerns, contact Olivia Vozzella at

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