Press

CurePSP 30th Anniversary Celebration: Committed to Care, Inspired to Cure will be held on Monday, December 7, 2020.

Learn ways to live with grief, build resilience, and have hope while dealing with frontotemporal degeneration (FTD) from Mary O’Hara, LCSW, a licensed clinical social worker, during a webinar on Thursday, November 12, 2020. The presentation “Living the Grief of FTD — The Winding Paths of Loss, Love, and Resilience” begins at 2:30 p.m. Eastern…

Experts will offer practical information to family members who are caring for loved ones with dementia during “Managing Dementia Care: A Virtual Panel Discussion” on Tuesday, November 10, 2020. The one-hour presentation begins at 2:00 p.m. Eastern Standard Time (11:00 PST) Attendees will hear a panel of experts provide practical information, followed by a moderated…

Caregivers can learn techniques to cope with burnout and to become empowered and inspired to live healthier and happier lives at the CurePSP Virtual Caregiver Conference on Friday, November 13, 2020.

Persons diagnosed with neurodegenerative diseases and their families can learn management techniques during the CurePSP Virtual Family Conference on Saturday, November 14, 2020. Online sessions will run from 10:30 a.m. to 3:00 p.m. ET (7:30 a.m. to 12:00 p.m. PT). Cost is $10. This event is for patients, caregivers, and family members who are affected by…

Learn about genetic testing in frontotemporal degeneration (FTD), considerations in deciding whether to test, and the complexities of potential results during “Genetic Testing — A Practical Approach” on Thursday, October 29, 2020. Hosted by the Association for Frontotemporal Degeneration, this one-and-a-half-hour webinar begins at 4:00 p.m. EDT (1:00 p.m. Pacific). Jamie C. Fong, MS, CGC,…

In March 2021, the Association for Frontotemporal Degeneration (AFTD) will host a Patient-Focused Drug Discovery (PFDD) meeting with representatives of the U.S. Food and Drug Administration (FDA). This meeting offers a chance to inform the federal agency that regulates every prescription drug that enters the market about living with frontotemporal degeneration (FTD). By completing the FTD…

On Saturday, October 3, 2020, presenters from around the globe will mark World FTD Awareness Week by sharing information, resources, and updates on frontotemporal degeneration (FTD) through an online program. While hearing international FTD presentations usually requires traveling to far-away conferences, this year the experts will be brought to the people during the 2020 World…

The coronavirus pandemic due to COVID-19 has changed the process of genetic counseling and testing.

The importance of genetics in the search for FTD treatments and a cure.