Press

A conversation with Dr. Sonja W. Scholz, M.D., Ph.D.

ALLFTD is a comprehensive multicenter cooperative study targeting the spectrum of frontotemporal lobar degeneration disorders (FTLD).

Unlimited cell phone plans are a must for the two program managers who are charged with overseeing the day-to-day operation of the new ALLFTD Study, especially since each resides in a different time zone and the study’s sites span the United States and Canada. As ALLFTD program managers, Leah Forsberg, Ph.D., with Mayo Clinic in Rochester, Minnesota,…

Are you getting enough quality sleep? As a caregiver, chances are that sleep is one of your top struggles.

The Bluefield Project to Cure Frontotemporal Dementia has launched the Neurofilament Surveillance Project (NSP) study which will measure blood levels of a protein called neurofilament light chain (NfL). This study began on August 24, 2020, and is recruiting members of families with genetic forms of FTLD. As a new, four-year clinical study, NSP will gather…

“Robin’s Wish,” a documentary detailing the tragic death of comedian Robin Williams and the challenges he faced battling neurological brain disease, was released September 1, 2020. The movie explains what really happened to him at the end of his life, and it reveals the power behind the mind of one of the greatest entertainers. Williams’…

The next Ask the Scientist webinar will feature Michelle Troche, Ph.D., discussing developing treatments for swallowing and communication deficits in progressive supranuclear palsy (PSP). It will take place on Thursday, September 3, 2020, at 12:00 p.m. Eastern Daylight Time (9 a.m. PDT) Dr. Troche currently serves as an associate professor of speech and language pathology in…

Advance care planning will be the focus of an Association for Frontotemporal Degeneration (AFTD) webinar on Thursday, August 27, 2020, beginning at 4:00 p.m. Eastern Daylight Time (1:00 p.m. Pacific). Presenters will be Bryan J. Adler, Esq., a certified elder law attorney from the Rothkoff Law Group, and Cynthia Clyburn, MSW, LCSW, from the University of Pennsylvania’s…

Now is the time to begin planning to participate in the 8th Annual Food for Thought (FFT) campaign which is scheduled for September 27-October 11, 2020. FFT is a grassroots fundraising and awareness campaign sponsored by the Association for Frontotemporal Degeneration (AFTD) that uses food-focused events as a venue for FTD education. Anyone can host an event…

A conversation with Dr. Alexander Pantelyat on music and movement disorders