Press

This webinar is over, however, you can view a recording of it by clicking here. CurePSP is sponsoring a free online webinar on “Self-Compassion for Caregivers” on Thursday, November 7, 2019, at 7:00 p.m. EDT. Janet Edmunson, M.Ed., will share new research and information about how caregivers can give themselves self-compassion. This webinar is for family and…

Consortium targets frontotemporal lobar degeneration research.

New $5 million grant-making initiative seeks to foster collaboration between scientists from academia and the pharma/biotech industry.

The second annual progressive supranuclear palsy (PSP) event in Montreal, Canada, will be on Saturday, October 19, 2019, from 10:00 a.m. until 3:30 p.m. at Centre de recherche du CHUM (CRCHUM). This event is free, but registration is mandatory. Like Alzheimer’s disease, PSP is a tauopathy, a neurodegenerative disease characterized by abnormal hyperphosphorylation of microtubule-associated…

Virginia Man-Yee Lee, Ph.D., a neuropathologist at the University of Pennsylvania, is the 2020 recipient of the Breakthrough Prize in Life Sciences for her lifetime work in understanding how misfolded proteins can spread through cells, leading to the progression of diseases like Alzheimer’s, frontotemporal degeneration (FTD), Parkinson’s, and amyotrophic lateral sclerosis (ALS), otherwise known as…

Enrollment for this study has closed.

This fall from September 22-29, 2019, World FTD Awareness Week will celebrate its fifth year.

The National Institutes of Health (NIH) offers a free pamphlet about frontotemporal degeneration (FTD) that is meant to help diagnosed persons, family members, and caregivers learn more about these conditions. Frontotemporal Disorders: Information for Patients, Families, and Caregivers also offers resources for coping with these disorders. The 32-page publication provides detailed information about the three major types…

AL001 was seen to be generally safe and well-tolerated based on the results of the Phase 1 portion of the INFRONT clinical study.

The New York Memory Center in New York City will be hosting an event titled “When It’s NOT Alzheimer’s” to discuss lesser-known dementias, including frontotemporal degeneration (FTD). This meeting, which is for family caregivers to persons living with a cognitive impairment, will be from 5:00 p.m. to 7:00 p.m. on Wednesday, September 25, 2019. A…