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Sam and Debbie Feldman were in the prime of their lives — successful careers, living in a Connecticut suburb, and raising a couple of boys — when Sam was diagnosed with progressive supranuclear palsy (PSP), a rare, degenerative brain disease that has similar symptoms to Parkinson’s disease and amyotrophic lateral sclerosis (ALS), also known as…

The Washington Post recently published an article titled “ ‘Well, that was a weird moment’ and other signs of dementia family members should watch for” which outlined behaviors that may signal frontotemporal dementia (FTD). The article starts with the story of a father who began exhibiting odd behaviors. At work he stopped following through with clients, quit returning…

The TANGLES study was established to provide a better understanding of the role that the protein tau has in neurodegenerative disorders.

Meet Dr. Nupur Ghoshal, Neurologist with Washington University School of Medicine in St. Louis, Missouri.

AFTD study results show survey participation benefits science.

U.S. News & World Report recently featured frontotemporal dementia (FTD) in a Health Care section article by staff writer Ruben Castaneda. Titled “What is Frontotemporal Dementia?” the article provides an overview of this rare disease, including how it manifests via dramatic changes in personality and compulsive behavior. FTD can involve compulsive behavior and a dramatic change in personality.…

The Alzheimer’s Drug Discovery Foundation (ADDF) recently reported that it has a new initiative which seeks to fast-track developing digital tools for Alzheimer’s disease and related dementias. This is part of the ADDF’s new Diagnostics Accelerator (DA) research program. Digital tools may enable the remote capture of changes in a patient’s physical and mental status at various stages of…

The Penn Frontotemporal Degeneration Center will hold its annual FTD Caregiver Conference

A play based on the true story of a clown who gets dementia will premiere in Portland, Oregon, on May 30, 2019, with a reception and special showing that benefits the Association for Frontotemporal Degeneration. Going Down in Flames is based on the true story of legendary San Francisco clown Queenie Moon. The play by Danny Mankin…