Virtual Panel: Power in Numbers

Join Us for an Important Conversation at the 2025 AFTD Education Conference

Virtual Breakout Panel | Friday, May 3rd | 3:45 PM MT / 5:45 PM ET
Power in Numbers: How the FTD Disorders Registry Drives Groundbreaking Research

What if your lived experience could help unlock new insights and accelerate the path to effective treatments for FTD?

Since its launch eight years ago, the FTD Disorders Registry has had a transformative impact on frontotemporal degeneration research, care, and advocacy. At this year’s AFTD Education Conference, don’t miss an important virtual breakout session exploring how the Registry is driving real change—and how you can be a part of it.

“Power in Numbers: How the FTD Disorders Registry Drives Groundbreaking Research” brings together key voices from across the FTD community:

• Leah Forsberg, PhD (Mayo Clinic) will share how she uses Registry data to deepen our understanding of FTD and support innovative research.
• Stella McCaughey, PhD (Alector) will offer insights into how Registry data guides drug development and clinical trial design.
• Scott Oxarart (AFTD Ambassador) will speak to the importance of participant involvement and how contributing your lived experience can make a meaningful impact.
• Carrie Milliard, MS, CGC, CCRC, Director of the FTD Disorders Registry, will moderate the conversation and highlight how the Registry continues to evolve to support the FTD community.

This session is a chance to see how the Registry connects individuals, researchers, and industry leaders—and why your participation is so vital to future breakthroughs.

Join us on Friday, May 3rd at 3:45 PM MT / 5:45 PM ET