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For Researchers

Our mission is to help researchers advance the science. We encourage the research community to collaborate with the FTD Disorders Registry. The Registry can help you query de-identified existing data, collect survey data on your behalf, or propose a collaborative research study. We can list your research study on our website and notify potentially eligible study candidates.

Use Registry Data in Your Research

As a member of the FTD research community (clinician, researcher, or biotech/pharma) you may contact us to apply for access to FTD Disorders Registry data. You can apply to have us query existing data, collect survey data on your behalf, or propose a collaborative research study. Please submit a short proposal detailing the research question(s) and purpose for review by our Scientific Advisory Board. You can learn more about this process by contacting the Registry Director.

Contact us to apply for access to FTD Disorders Registry data (director@ftdregistry.org or call 888-840-9980).

List Your Study on the Registry Website

You can apply to list your study or survey on our “Find a Study” webpage. We will post a short description of your study and a link to additional study information.

Contact us to list your study on the FTD Disorders Registry website (director@ftdregistry.org).

Other Ways for Researchers & Healthcare professionals to Collaborate

Please feel free to suggest other ways that researchers and healthcare professionals can collaborate with the FTD Disorders Registry. If you have an idea, we would love to hear it, via our PARTNER WITH US or SEND SUGGESTIONS links.