Genetics of FTD

Genetics is making a difference in research and the knowledge gained about frontotemporal degeneration (FTD). A selection of resources on this topic is provided below:

association for Frontotemporal Degeneration

The Association for Frontotemporal Degeneration (AFTD) is an advocacy organization with a mission to improve the lives of people affected by FTD. Here are a couple of the resources the AFTD offers on its website:

Sponsored Genetic Testing Programs

Sponsored genetic testing programs fill a gap between what insurance companies cover and what needs to be known for diagnostic purposes and for possible consideration in clinical trials. Learn more from these resources:

FTD DISORDERS REGISTRY

The FTD Disorders Registry has the following resources:

    Articles:

    Handouts created in collaboration with Penn FTD Center:

    Webinars:

    Studies that are currently recruiting that focus on finding or knowing your genetic status:

    HOW TO FIND A SPECIALIST

     

    ** Any resources that the FTD Disorders Registry (FTDDR) provides are for informational purposes only. FTDDR is not responsible for and does not endorse the materials at the linked sites. Advice regarding your personal medical management should be obtained through consultation with a healthcare provider who is familiar with your medical history.