The FTD Disorders Registry is a nonprofit LLC founded by The Bluefield Project to Cure Frontotemporal Dementia and The Association for Frontotemporal Degeneration (AFTD). These two organizations remain committed to the success of the Registry, providing strategic leadership and funding to sustain the business operations.
The Bluefield Project was founded by a family group whose lives have been directly impacted by frontotemporal dementia (FTD). The Bluefield Project was established in 2010 to fund research directed towards curing FTD. Frustrated that there were no treatment prospects on the horizon for frontotemporal dementia, this family provided funds to the University of California, San Francisco, to form the Consortium for Frontotemporal Dementia Research (CFR). The Bluefield Project works to raise awareness and increase support to accelerate frontotemporal dementia research. The Bluefield Project is a 501(c)(3) organization.
AFTD was founded (originally as the Association for Frontotemporal Dementias) by Helen–Ann Comstock in 2002. The organization is the product of her experience as an FTD caregiver and collaboration with scientists, physicians, and other caregivers who echoed the need for increased attention to these devastating diseases. Today AFTD funds research toward diagnosis, treatment, and a cure; provides information and support to those directly impacted by FTD; works to raise awareness and understanding of FTD; and advocates for research and appropriate, affordable services. AFTD values knowledge, collaboration, respect, dignity, and compassion. The AFTD is a 501(c)(3) organization.
In addition to funding from the Bluefield Project and The AFTD, the FTD Disorders Registry is supported by a generous grant from the Rainwater Charitable Foundation’s Tau Consortium program.