Clinical Trials and Beyond Webinar: June 24, 2022

Clinical Trials and Beyond: What Do I Need to Know About Types of FTD Research? will be presented Friday, June 24, 2022, beginning at 3:00 p.m. EDT (12:00 p.m. Pacific).  This webinar is part of the Perspectives in Research Webinar Series co-hosted by the Association for Frontotemporal Degeneration and the FTD Disorders Registry.

When people choose to participate in FTD research, scientists are able to gain a clearer understanding of this disease as they seek effective treatments. Taking that first step can be overwhelming. 

This webinar aims to explain FTD research by describing the different types of studies and sharing what is important to know before you participate. 

Elizabeth Finger, MD, of Western University, will walk you through research study types such as clinical trials, non-pharmacological interventions, and natural history studies. 

Representatives from AFTD and the FTD Registry will address safety and privacy concerns and provide information about how you can get involved in advancing FTD science.

This webinar will teach you how to:

• Identify different types of FTD research opportunities.
• Appreciate how privacy, safety, and personal information are protected in research.
• Recognize motivators for participating in research.
• Obtain key questions to ask when deciding to participate in research.

The webinar will be about 60 minutes long. Webinars can fill up quickly, and you must register to attend.

Watch the replay below.

PRESENTERS

Elizabeth Finger, MD, is an Associate Professor of Neurology at Western University. She received her MD from Cornell University, and completed an internship in Internal Medicine at Massachusetts General Hospital, followed by residency in Neurology at Massachusetts General Hospital and Brigham and Women's Hospital in Boston. Dr. Finger completed a clinical research fellowship at the National Institutes of Health in the Unit on Affective and Cognitive Disorders at the National Institute of Mental Health. Her clinic and research programs are focused on frontotemporal degeneration, social cognition, and treatment.

Shana Dodge, PhD, is AFTD's Director of Research Engagement. A licensed clinical psychologist, she holds a Ph.D. in Clinical Psychology from the University of Hawaii, an MA in Psychology from the New School, and a BA in Psychology from George Washington University. Shana has research and clinical experience in cognitive therapy and remediation, early detection of psychiatric conditions, and serious mental illness. Previously, she worked for SAIC, a contractor for the Department of Defense, supporting program evaluation and change management of more than 200 military health programs.

Lakecia Vincent, MPH, MCHES, is Registry Manager at the FTD Disorders Registry. She received a Master of Public Health from Walden University and a Master Certified Health Education Specialist from the National Commission for Health Education Credentialing. She is a dedicated public health professional with 10 years of experience in program design, implementation, health promotion and education. Her experiences have focused on intersecting public health education and clinical research to enhance and impact individuals across the continuum of health. As Registry Manager, Lakecia is responsible for supporting the strategic development, implementation, and daily operations of the Registry. She works directly with Registry participants and facilitates access to advocacy organizations and FTD resources.