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CurePSP 30th Anniversary Celebration: December 7, 2020

CurePSP-30th

CurePSP 30th Anniversary Celebration: Committed to Care, Inspired to Cure will be held on Monday, December 7, 2020.

CurePSP 30th Anniversary Celebration: Committed to Care, Inspired to Cure will be held on Monday, December 7, 2020. This event will recognize three decades of impact; will honor CurePSP’s legacy of changing lives; will celebrate important milestones; and will bring together leaders, supporters, patients, families, and volunteers.

This virtual party begins at 7:00 p.m. Eastern Standard Time (4:00 p.m. Pacific); attendees can log in at 6:30 p.m. (3:30 p.m. PST).

The celebration will feature:

  • Tony Dokoupil, Master of Ceremonies, Co-Host of CBS This Morning.
  • A virtual celebration
  • Segments of musical talent from Acute Inflections
  • Speakers reflecting on the influence of the organization’s mission on patients as well as the state of neurodegenerative research
  • Awards and recognition for volunteers and visionaries
  • A mobile silent auction, which begins November 27, 2020. To contribute to the silent auction, email events@curepsp.org.

The following agenda is subject to change (all times are EST):

  • 6:30 p.m. Interactive online platform opens; virtual cocktail tables
  • 7:00 - 8:00 p.m. 30th Anniversary Celebration!
  • 8:00 p.m. Celebration closes with a digital mosaic reveal
  • 8:00 - 8:30 p.m. Interactive online platform closes

Watch a recording of the event below.

Play Video

Host

The celebration will be hosted by Tony Dokoupil, CurePSP ambassador and the Co-Host of “CBS This Morning.” Mr. Dokoupil lost his grandfather to PSP.

Prior to his current position, Mr. Dokoupil was a CBS News correspondent and a "CBS Sunday Morning" contributor. His reporting has appeared across all CBS News broadcasts and platforms. Since joining CBS News in 2016, he has interviewed a variety of major artists, entertainers, and newsmakers, including First Lady Hillary Clinton, comedy legend Steve Martin, and music superstar Dolly Parton.

Entertainment

Acute Inflections will provide simple and intoxicating jazzy, funky, and sultry music. Elasea Douglas, former Broadway singer, and Sadiki Pierre, bassist, are Acute Inflections. Reviewers describe them as “a velvety mix of Erykah Badu and Billie Holiday paired with the cool grooves of a 007 on bass.” While they are based in New York, they travel across the country performing for corporate events, weddings, and exclusive soirées. They’ve shared the stage with Jennifer Hudson, Keith Urban, and other notable artists, and their diverse repertoire includes Jazz, Top-40, and everything in between.

Awards

CurePSP will present awards to leaders in the field of neurodegeneration for their work in genetics, clinics, biomarkers, studies with patients, medicine, imaging, and more as it relates to PSP, CBD, and MSA. Their leadership efforts help advance the state of neurodegenerative research or care. Those being honored include:

  • James Rowe at the University of Cambridge
  • Günter Höglinger at Hanover Medical School in Munich, Germany
  • Maria Stamelou at Hygeia Hospital in Athens, Greece
  • Jerry Schellenberg at the University of Pennsylvania
  • Bess Frost at the University of Texas
  • Jori Fleisher at Rush University

Tickets

Everyone who donates, registers, or purchases an "Event Enhancement" add-on will be able to watch the event on CurePSP’s Facebook and YouTube pages.

Only those who register for a Celebration or a VIP ticket will be invited to the special interactive online platform the week of the event.

The event will be recorded, and the video will be emailed to all who register.

Each Celebration ticket has a value of $45; however thanks to donors, CurePSP is able to offer them at no cost to attendees. If you would like to support CurePSP's efforts, you can make a gift here.

VIP tickets are sent to the guests of anyone who purchases or sponsors a virtual cocktail table on the interactive online platform, like the Celebration Ticket. They are specially coded to a specific table, and each ticket comes with an optional curated "Party in Place" box for the guest. These tickets are only revealed through a special link emailed from a staff member to the buyer of the table to send to their guests.

Interactive Platform

The interactive online platform will enable attendees to join different public virtual cocktail tables, to mingle with other guests and sponsors, to join the main session, to watch with other participants, and to use the virtual photo booth to upload pictures into a digital photo mosaic.

Virtual Cocktail Tables

Watch the live stream with friends, family, and coworkers at a private virtual cocktail table. Each virtual cocktail table allows for ten video participants, and each table can be branded with an optional logo. Choices include an open table for networking or a private table for a special group.

A speaker, awardee, or board member may drop in to say hello and share a toast with a table.

Cocktail tables are available at registration checkout for $1,000 each and include 10 VIP tickets. VIP tickets come with an optional curated "Party in Place" box. A special link will be emailed from a CurePSP staff member to the buyer of the table to send to their guests to register for the hidden VIP ticket.

The deadline to purchase a table is Wednesday, December 2, 2020, at 5:00 p.m. EST.

Boxes & Bags

Enhance your enjoyment of the event and support CurePSP with "Party in Place" boxes. Each box is built for two people and includes:

  • Two engraved 8-piece stainless-steel flatware sets
  • Two red monogrammed fabric napkins
  • Two stemless engraved wine glasses
  • Two branded cotton face masks

Boxes are available at registration checkout for $100 each.

CurePSP gift bags contain a branded red wine tumbler and a set of blank botanical greeting cards painted by Jessica Tcherepnine, a self-taught botanical artist who had CBD. They are available at registration checkout for $50 each.

Orders for “Party in Place” Boxes and Gift Bags must be placed by November 20, 2020, to ensure delivery by the event date. Orders will be accepted afterward, however, delivery cannot be guaranteed by the date of the event. Orders are placed on Fridays and shipped on the following Monday or business day. Allow 7-10 days for shipping. There are no refunds.

For any questions about merchandise, contact CurePSP at events@curepsp.org.

Digital Mosaic

The digital mosaic is a unique, transformative graphic that uses multiple images. CurePSP is asking people affected by primary progressive aphasias (PSP) to upload pictures of themselves, volunteers, and loved ones from the past 30 years for a dramatic reveal at the end of the celebration event!

Use the hashtag #CurePSP30 on a photo posted to a public Twitter or Instagram account or text your picture to the phone number +1 201-754-5274. Deadline is by the end of the event on December 7. Pictures will automatically be uploaded to create the graphic.

Additionally, the uploaded photos and digital mosaic will be used promotionally by CurePSP. The mosaic will be available on YouTube after the event.

Sponsorships

CurePSP is seeking sponsors for this and other events. Share your strategy and current plans and work together to develop custom programs following any budget size. You can view the sponsorship prospectus here.

All submissions to the program and event are subject to approval. Any funds raised beyond the cost of the event will go to the general mission of CurePSP, Inc. Donations/gifts/sponsorships are tax-deductible to the amount allowable by law. Consult your tax advisor for details.

This event is supported in part by the Light of Day Foundation Inc., which uses the power of music to raise money and awareness to battle and defeat Parkinson’s disease and its related illnesses ALS (Amyotrophic Lateral Sclerosis) and PSP.

Organizations that wish to sponsor this or other CurePSP events can contact Jaclyn Zendrian at events@curepsp.org for more information.

CurePSP

CurePSP is a nonprofit organization working to increase awareness, advocate for patients and families, and fund research for devastating prime of life neurodegenerative diseases, including PSP, CBD, and MSA. CurePSP provides advocacy and support for patients, families, and caregivers; education for physicians and allied healthcare professionals; and funding for research.

To support CurePSP's mission of care, consciousness, and cure for prime of life neurodegenerative diseases, you can go to this link or donate at registration checkout.

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