PRESS & NEWS
CurePSP Fall Family Conference: November 14, 2022
The CurePSP Fall Family Conference will be held in person at the Airport Marriott in Philadelphia, Pennsylvania on Monday, November 14, 2022.
The CurePSP Fall Family Conference will be held in person at the Airport Marriott in Philadelphia, Pennsylvania on Monday, November 14, 2022.
Early bird registration is $15 per person. Cost is $30 per person beginning Tuesday, November 1, 2022.
CurePSP is partnering with Penn Medicine for this event, which will present information on multidisciplinary care, physical therapy, research updates, social work, palliative care, and more as related to progressive supranuclear palsy (PSP), multiple system atrophy (MSA), and corticobasal degeneration (CBD).
The featured speaker will be Andres Deik, M.D., a neurologist and Movement Disorders Specialist at Penn Medicine with an interest in dystonia, a state of abnormal muscle tone due to neurodegenerative diseases. He is the site principal investigator for clinical trials in Movement Disorders. He seeks to identify pathological biomarkers and effective physical therapy treatments for those living with neurodegenerative diseases.
Content from the in-person Philadelphia Family Conference will be available online at the Virtual Fall Family Conference during two half-day sessions on Friday, December 9, and Friday, December 16, 2022.
Those who register for the in-person gathering in November will receive information on how to register for the Virtual Family Conference.
If you would like to attend the event, but cannot afford a ticket, you can attend as a donor-sponsored guest by using the promo code BECAUSEHOPEMATTERS.
For more information, email events@curepsp.org.
Registration includes access to the in-person conference, breakfast and lunch, educational handouts, and the ability to watch the content again online at the Virtual Fall Family Conference on December 9 and 16, 2022.
AGENDA
The full-day in-person conference will feature speakers and discussions centered around the patient experience.
- 8:30 - 9:30 a.m. Breakfast & Mingle
- 9:30 - 9:45 a.m. Welcome & Opening Remarks
Speakers: Kristophe Diaz, PhD, and Jessica Shurer, MSW, LCSW - 9:45 - 10:15 a.m. Overview of Multidisciplinary Care for Patients with Atypical Parkinsonian Syndromes
Speaker: Andres F. Deik, MD - 10:15 - 10:45 a.m. Mobility Tips & Tricks for Individuals Living with PSP, CBD, & MSA
Speaker: Heather Cianci, PT, MS, GCS - 10:45 - 11:15 a.m. Break
- 11:15 - 11:45 a.m. Bringing the Microscope to Clinic: Improving Diagnosis and Treatment of PSP and Related Conditions Through Detailed Study of the Human Brain
Speaker: David Irwin, MD - 11:45 - 12:30 p.m. Multidisciplinary Care Panel
Speakers: Andres F. Deik, MD; Heather Cianci, PT, MS, GCS; and David Irwin, MD - 12:30 - 1:30 p.m. Lunch
- 1:30 - 2:00 p.m. The Role of Social Work in the Management of MSA, PSP, & CBD
Speaker: Lauren Zelouf, MSW, LCSW - 2:00 - 2:30 p.m. Palliative Care
Speaker: Matthew Mendlik, MD, PhD - 2:30 - 2:50 p.m. Break
- 2:50 - 3:35 p.m. Patient Panel Discussion
Moderator: Jessica Shurer, MSW, LCSW - 3:35 - 3:50 p.m. Closing Remarks
Speakers: Kristophe Diaz, PhD, and Jessica Shurer, MSW, LCSW - 3:50 - 4:45 p.m. Snacks & Mingle
CurePSP sponsors and organizes family conferences among its various educational activities, allowing people to learn more about PSP, CBD, and MSA and develop a sense of community.
Event planners will monitor the COVID-19 pandemic and update registrants if there are any changes.
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