Get Ready for World FTD Awareness Week

World FTD Awareness Week is just around the corner! This year, the campaign asks a powerful question: “What If It’s FTD?”

The goal is simple but urgent: to raise global awareness of frontotemporal degeneration (FTD) and its unique challenges. Unlike Alzheimer’s disease, which is often associated with memory loss, FTD usually first appears through changes in behavior, personality, and language. It often strikes at a younger age, brings a heavier caregiving burden, and can carry the added impact of genetic transmission within some families.

We are calling on everyone touched by FTD, including those living with FTD, people at risk, caregivers, healthcare professionals, researchers, advocates, and allies, to participate in this year’s campaign. Together, we can shine a light on FTD disorders, spark conversations, and build a stronger global community of support and action.

How You Can Prepare

• Update your profile photo. Download and use the official World FTD Awareness Week frame to show your support.
• Explore the AFTD social media toolkit. Find ready-to-use graphics, sample posts, and hashtags to help spread the word.
• Share your story. Personal voices bring power and authenticity to the campaign.
• Visit the World FTD United website. Throughout the campaign, you will be able to comment and add your story.

Every post, every share, and every conversation moves us closer to a world where FTD is recognized, understood, and met with compassion and action.

Get started today by updating your profile image and checking out the social media toolkit.

Together, let’s raise awareness and ask the world: “What If It’s FTD?”