PRESS & NEWS
International FTD Caregiver Day Meeting: Friday, November 4, 2022
ISFTD Congress offers in-person and virtual events at no cost. Caregiver Day offers in-person and virtual options for family members and professional caregivers to attend on Friday, November 4, 2022.
ISFTD Congress offers in-person and virtual event at no cost
Caregiver Day, a part of The International Society for Frontotemporal Dementias (ISFTD) biennial meeting, will be held for family members and professional caregivers on Friday, November 4, 2022.
This will be a hybrid event with in-person attendance in Lille, France. Cost to attend this portion of the ISFTD conference, whether in-person or virtually, is free.
ISFTD, a nonprofit scientific society focused on frontotemporal dementia (FTD), includes leaders in FTD research from around the world.
“The science in the field of neurodegenerative disease, and frontotemporal dementia, in particular, is racing ahead, and potential treatments are being developed and tested,” according to the ISFTD website.
The society hosts a large, international biannual meeting where the latest findings are presented. About 700 people are expected to attend this year’s event November 2-5, 2022, in France. The Paris symposium will be held Wednesday, November 2, 2022, and the ISFTD Congress will be in Lille November 3-5, 2022.
AGENDA
All times listed are local in Lille France (Central European Summer Time = GMT+2)
9:45 - 11:30 a.m.
- Opening Address
Presenters: Florence Pasquier and Dominique de Blanchard - Overview of the FTD Spectrum Disorders
Presenters: Janine Dieho-Schmid (Germany) and Yolande Pijnenburg (the Netherlands) - What Are the Contributions of Biomarkers (imaging, blood, CSF, etc.) and Role of Brain and Tissue Donation
Presenter: Vincent Deramecourt (France) - Genetic in FTD
Presenter: Caroline Greaves (United Kingdom)
11:00-11:30 a.m.
- Nothing About Us Without Us: Giving Voice to Persons with a Diagnosis, Family Members and Care Partners Through Research Participation
Presenter: Katherine Brandt (United States) - Results of the Better Conversations with Primary Progressive Aphasia (BCPPA) Pilot-feasibility Trial: Communication Partner Training to Keep Families Together
Presenter: Anna Volkmer (United Kingdom)
11:45 a.m. - 1:45 p.m.
- Lunch Break
1:45-3:35 p.m.
- Support for Caregivers by the Association France-DFT
Presenter: D. de Blanchard (France) - Patient Therapeutic Education
Presenter: Florence Lebert (France) - Support and Respite Platforms for Family Caregivers
Presenter: L. Forster (France) - A Research for the Patients and Their Families
Presenter: Philippe Amouyel-Fondation Alzheimer (France) - France Alzheimer: A Daily Support
Presenter: Kevin Rabiant (France) - Caring for Caregiver: The Experience of Aimft, the Italian Association of Frontotemporal Disease
Presenter: Laura Invernizzi (Italy) - Local experiences in Supporting Caregivers in the USA
Presenter: Sharon Denny (United States) - Domestic Violence in FTD
Presenter: Emmanuel Cognat (France) - Accompanying the Children of Person with Dementia
Presenter: Helga Schneider-Schelte (Germany) - Q&A with all speakers
3:35-4:35 p.m.
- Coffee Break
4:35-5:45 p.m.
- Creative Workshop to Express the Feelings of Patients and Relatives
Presenter: Carl Cordonnier (France) - Testimony of D. Delatte (France)
- Testimony of A.C. Ospina (France)
- Testimony of Remy Colein
- Advance Care Planning and Medical Decision-making in the Era of COVID-19: Use of Video Tools for Guiding Dementia Caregivers
Presenter: Bonnie Wong (United States) - A Prospective Study of Criminal Risk Behaviours in Frontotemporal Dementia
Presenter: Fiona Kumfor (Australia)
5:45-6:20 p.m.
- Industry Sessions Q&A
Presenters: all speakers
6:25-6:55 p.m.
- Lecture: Molecular Basis of Glial Pathologies in FTLD
Presenter: Eric Huang
ORGANIZING COMMITTEE
- Susan L-J Dickinson and Sharon Denny (AFTD)
- Dominique de Blanchard And Bertille Foulon (France, Belgium, Switzerland, and Luxembourg FTD)
- Nikki Zimmerman: FTD support group in UCL. (London)
- Caroline Greaves: GENFI (Europe and Canada)
- Professor Janine Diehl-Schmid: German Alzheimer's Association's
- Professor Yolande Pijnenburg: Netherlands association
- Professor Florence Pasquier, chairwoman of the local organizing committee
ASSOCIATIONS
SPONSORS
- Platinum
- Alector Inc.
Gold
- Prevail Therapeutics
- AFTD
- Passage Bio
Silver
- Wave Life Sciences
Bronze
- Arkuda Therapeutics
- Denali Therapeutics
- The Rainwater Prize
- AvidaoBio Ltd.
- Alzprotect
- Takeda Pharmaceutical Co. Ltd.
Partners
- Association Naturalia & Biologia (NEB)
- Sorbonne Universite
- Associazione Frontotemporale (AIMFT)
- Centre de Reference Demences Rares ou Precoces
- Fondation Alzheimer (FA)
- Hauts-de-France Region
- France Alzheimer & Maladies Apparentees
- Universite de Lille
- Dist Alz Laboratoire D’Excellence
- Paris Brain Institute (ICM)
- Lille Centre of Excellence for Neurodegenerative Disorders (LiCEND)
- France dft Association
- hello lille
- CHU Lille
Together we can find a cure for ftd
The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.
Your privacy is important! We promise to protect it. We will not share your contact information.