PRESS & NEWS

EL-PFDD Meeting: March 5, 2021

Take the survey, watch the live stream, have your FTD voice heard!

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FEATURED STUDY: PROCLAIM – A Study of PR006 with FTD-GRN

The PROCLAIM study, sponsored by Prevail Therapeutics, is evaluating safety and effectiveness of a one-time investigational gene therapy (PR006) intended to treat people…

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Perspectives in FTD Research: Webinars Conducted in Partnership

The FTD Disorders Registry and The Association for Frontotemporal Degeneration (AFTD) have developed a partnership to present educational webinars for the…

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FTDDR Announces 2020-2022 Strategic Plan

The FTD Disorders Registry (FTDDR) has announced the release of its first Strategic Plan.

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CurePSP Ask the Doctor: December 15, 2020

On Tuesday, December 15, 2020, Miriam Sklerov, M.D., M.S., movement disorders specialty neurologist at the University of North Carolina School of Medicine,…

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Together we can find a cure for ftd

The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.

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