PRESS & NEWS

CANCELED: 17th Annual CurePSP Awareness & Memorial Walk: March 21, 2020

Due to the coronavirus outbreak, CurePSP has canceled this year’s Annual Marco Island Walk.

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#ShowYourStripes on Rare Disease Day: February 29, 2020

Rare Disease Day is recognized annually around the world on the last day of February to raise awareness about rare diseases and…

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PSP and CBD May Be Twice as Common in UK, UCL study shows

Up to 10,000 people in the UK could be living with these rare neurological disorders

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A Healthy Lifestyle May Slow Familial FTD

Study suggests patients can influence outcomes despite a genetic diagnosis.

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CANCELED: 2020 AFTD Education Conference: April 17, 2020

Due to the coronavirus outbreak, AFTD has made the difficult decision to cancel this year’s Education Conference, which includes all events for April 16 and…

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Together we can find a cure for ftd

The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.

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