PRESS & NEWS

FTDDR Exceeded Enrollment Predictions on First Day!

More than 2,300 persons affected by frontotemporal degeneration, including more than 400 diagnosed persons, have enrolled in the FTD Disorders Registry…

more >

FTDDR Celebrates 2 Years!

Guess who’s turning two? Yes, 2 years ago on March 28, 2017, the FTD Disorders Registry (FTDDR) was launched when our…

more >

AFTD Education Conference: May 3, 2019

Find Help. Share Hope. You are invited to the 2019 AFTD Education Conference on May 3, 2019, in Los Angeles.

more >

16th Annual CurePSP Awareness & Memorial Walk: March 9, 2019

The 16th Annual CurePSP Awareness & Memorial Walk, sponsored by the SW Florida PSP Support Group, will be Saturday, March 9, 2019,…

more >

Show Your Stripes on Rare Disease Day: Feb. 28, 2019

Thursday, February 28, 2019, is Rare Disease Day® in the United States. The main objective of this day, which is observed the last…

more >

Together we can find a cure for ftd

The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.

Your privacy is important! We promise to protect it. We will not share your contact information.

Read Full Privacy Statement