PRESS & NEWS
Registration is now open for the annual Penn Frontotemporal Degeneration (FTD) Familial Conference: Uncovering the Genetics of FTD/ALS. This event will be held virtually Tuesday, February 28, 2023.
more >
The FTD Disorders Registry in collaboration with the Association for Frontotemporal Degeneration (AFTD) published its first full-length, peer-reviewed journal article in 2022.
more >
Of the 817 responses to our Quick Question, nearly half (400) indicated that the FTD-diagnosed person lives or lived with their spouse and children …
more >
The FTD Disorders Registry received the 2022 MarDreamies Award for Grassroots Innovation for its use of technology to collect data from participants …
more >
CurePSP is hosting a Community Conversations webinar about “The Powerful Role of Grandchildren Caring for PSP, CBD, and MSA” on Thursday, February 2
more >Together we can find a cure for ftd
The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.
Your privacy is important! We promise to protect it. We will not share your contact information.