PRESS & NEWS

20th Annual SW Florida PSP Awareness and Memorial Walk: March 18, 2023

The Southwest Florida PSP Support Group Awareness and Memorial Walk is celebrating its 20th anniversary.

more >

AFTD 2023 Education Conference: May 5, 2023

The Association for Frontotemporal Degeneration (AFTD) will hold its 2023 Education Conference on Friday, May 5, 2023.

more >

Penn Familial Conference: Uncovering the Genetics of FTD/ALS Feb. 28, 2023

Registration is now open for the annual Penn Frontotemporal Degeneration (FTD) Familial Conference: Uncovering the Genetics of FTD/ALS. This event will be held virtually Tuesday, February 28, 2023.

more >

FTD Registry Publishes First Full-length, Peer-reviewed Article in 2022

The FTD Disorders Registry in collaboration with the Association for Frontotemporal Degeneration (AFTD) published its first full-length, peer-reviewed journal article in 2022.

more >

Quick Question December 2022 Results: With Whom Does/Did the FTD-diagnosed Person Live?

Of the 817 responses to our Quick Question, nearly half (400) indicated that the FTD-diagnosed person lives or lived with their spouse and children …

more >

Together we can find a cure for ftd

The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.

Your privacy is important! We promise to protect it. We will not share your contact information.

Read Full Privacy Statement