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Question of the month

Question of the month

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We need an official title for the newly launched Registry newsletter.

We need an official title for the newly launched Registry newsletter. Is there a word, or phrase that you think would make a perfect name for this publication?  Please take our newsletter naming survey to submit your ideas here.  The winning idea will be featured as the title of the next newsletter!

Not currently signed up to receive the e-newsletter? Consider joining the FTD Disorders Registry. FTD Disorders Registry enrollment has two levels of participation. Individuals that sign up as participants in the Contact Registry receive periodic e-newsletters and email updates about FTD. Individuals that also register for research participation in the Research Registry have access to participate in online surveys, polls, and other data collection opportunities.

Looking for more information to help you decide about joining the Registry? Check out the ABOUT THE REGISTRY page.  You can also contact us by phone 888-840-9980 or email to ask questions about enrollment.

The FTD Disorders Registry is for persons diagnosed with FTD and their biological family members, spouse, caregivers, and friends. Are you a clinician, medical/allied health professional, or researcher who would also like to join the FTD Disorders Registry newsletter mailing list? Please contact us directly at