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Quick Question January 2023 Results: Where Does/Did the FTD-diagnosed Person Live?

Quick-Questions-JAN-2023-blog

More than two-thirds (67%) of those answering our January 2023 Quick Question indicated that their FTD-diagnosed loved one lives or lived in a private residence.

More than two-thirds (67%) of those answering our January 2023 Quick Question indicated that their FTD-diagnosed loved one lives or lived in a house, apartment, or another type of private residence.

Several people (35) wrote in their answers. The majority of these (51%) indicated that their FTD loved one had died, but did not provide information about where they lived before they passed. A couple of respondents listed several locations the FTD-diagnosed person lived as the disease progressed prior to passing away including home, assisted living, nursing home for dementia, and hospice.

Two people indicated that their loved one lives/lived in a Veterans Health Administration (VA) hospital. Other write-in responses noted various specialty care centers the person with FTD lives/lived:

  • An adult family home
  • A small group home
  • A dementia care community similar to Alzheimer’s but with more hands-on services
  • A dementia care center for young clients with FTD
  • A locked memory care center
  • A neurological care center
  • A Parkinson’s specialty care center

People from 21 countries around the world gave their input in this month’s poll. Spouses (46%) and biological family members (37%) represented the greatest number of those who replied. Persons diagnosed with FTD made up 14%.

FTDDR_QQ-JAN-2023-Results-with-write-ins

Where does/did the FTD-diagnosed person live?

  • House/Apartment/Private residence, 67% (648)
  • Dementia long-term care, 10% (93)
  • General long-term care, 7% (71)
  • Dementia assisted living, 7% (63)
  • General assisted living, 4% (39)
  • Hospice care, 1% (13)
  • Write-in responses, 4% (35)

Write-in responses by topic:

  • FTD-diagnosed is deceased, 51% (18)
  • Specialty care center, 20% (7)
  • Multiple locations, 6% (2)
  • VA hospital, 6% (2)
  • Other, 17% (6)
FTDDR_QQ-JAN-2023-Results-relationship

Relationship to the FTD-diagnosed person:

  • A spouse, 46% (442)
  • A biological family member, 37% (359)
  • An FTD-diagnosed person, 14% (133)
  • A caregiver 2% (19)
  • A friend, 0.5% (4)
  • Blank/Prefer not to answer, 0.5% (5)

You can access questions and responses from last year on the Quick Questions 2022 webpage.

Quick Questions 2022

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